One-in-a-million people are living with EHE worldwide.

Our mission is to find treatments and a cure for epithelioid hemangioendothelioma (EHE) by advancing research and driving collaboration among patients, researchers, and clinicians.

We envision a world where Epithelioid Hemangioendothelioma (EHE) is easily diagnosed and treatable. Join our dedicated community by subscribing to our emails.

Patient-Powered EHE Research

EHE Biobank

Patients are the key to finding new treatments for EHE! Researchers need tumor tissue and fluid from EHE patients to understand disease progression and speed the development of new drugs and therapies.

Patient-Powered EHE Research

EHE Global Patient Registry

The EHE Global Patient Registry empowers people with Epithelioid Hemangioendothelioma (EHE) to join together to improve our understanding of this ultra-rare sarcoma. We need every EHE patient to join this critical tool used to support researchers searching for treatments and a cure for EHE.

Latest EHE News, Events and Research

Golf Outing to Benefit The EHE Foundation & Cleveland Clinic

By EHE Foundation | June 10, 2015

Any golfers in the York, Pennsylvania area? Devin O’Connor is hosting a golf tournament to benefit EHE Research this summer. If you don’t golf, come out and enjoy a BBQ dinner, silent auction, and other raffles. Delaney and I are going and we would love to fill a table or two with our EHE family […]

Golf Outing to Benefit The EHE Foundation & Cleveland Clinic Big Sucesss

By EHE Foundation | June 10, 2015

The York EHE Foundation hosted its 1st Annual Golf Outing to benefit the EHE Foundation and Cleveland Clinic on Friday, July 17, 2015. The event was a huge success raising over $17,000 for our cause!   Mandy O’Connor Mandy Elizabeth O’Connor was born in Seoul, South Korea, but became the daughter of Paul and Virginia […]

Delaney Wahl

By EHE Foundation | June 10, 2015

On April 22, 2014, Delaney was diagnosed with an extremely rare form of cancer called Epithelioid Hemangioendothelioma, also known as EHE. This form of cancer has absolutely zero funding or attention from outside sources because so few people are affected by it. Every penny of research has been funded by EHE patients, families, and friends. […]

Georgiana Trandafir

By EHE Foundation | May 4, 2015

Georgiana has a very special place in the hearts of the people who knew her. She had an aggressive type of EHE that at the time of diagnosis already spread to many sites of her body. She underwent very tough treatments, harsh chemo, radiation, surgery, but was one of the most positive enthusiastic members of […]

Kylar K

By Maggie Cameron | July 17, 2026

Taz and Terry Kelly’s Story of Loving Kylar Through Their EHE Journey Taz and Terry‘s only child, Kylar, was diagnosed with EHE in the fall of 2024 at just 21 years old. What followed was seven months of hospital stays, hard-won recoveries, and devastating setbacks. This is their story of loving and losing Kylar, and […]

ADCs–Unlocking Future Treatment Advances for EHE

By Kristianne Oristian, PhD | June 25, 2026

Why this matters for people with EHE For people living with EHE, finding an effective treatment and understanding who best benefits from treatments is one of the greatest challenges of this disease. Traditional chemotherapy is often ineffective for EHE, and the search for more effective treatment options is central to our mission at the EHE […]

A Powerful Community Gathering at the 2026 EHE 360 Global Conference

By EHE Foundation | June 23, 2026

The EHE Foundation hosted the sixth annual virtual convening of the EHE 360 Global Conference on April 31 – May 1, 2026. The conference brought together patients, caregivers, clinicians, researchers, regulators, and industry partners from around the world to promote education, broaden research collaborations, and advance therapeutic development for epithelioid hemangioendothelioma (EHE), an ultra-rare sarcoma. […]