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Latest EHE News, Events and Research
A Day of Fun Celebrating the Life of Brian Frank
Brian Frank passed away from EHE on September 2, 2014 at the age of 28. Brian had only been sick for about 6 months and was not properly diagnosed until he passed. His family and friends, led by his mother, Darlene Frank, and his sister, Angela Osborn, organize an annual event in Brian’s memory, which […]
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Giving Tuesday
Giving Tuesday is celebrated each year on the Tuesday following Thanksgiving and after the widely recognized Black Friday and Cyber Monday. It is recognized as an international day of giving at the beginning of the holiday season and is fueled by the power of social media. The day known as “#GivingTuesday” proved to be a […]
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Stay up to Date on EHE by Reading The Pledge: 11th Edition
Click here to read the Pledge, 11th Edition
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Softball Tournament in Memory of Justin Herald
Stephanie Herald and Courtney Walters, along with other family and friends of Justin Herald organized a memorial softball tournament in his memory in Hailey, Idaho on June 3-4 2017. They had a spectacular event with outstanding community support, great weather, and a group of enthused players. Justin was a full-time fireman and paramedic, a certified […]
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Running 100 Miles for EHE
Jimmy Crook started the 100 mile challenge many years ago, while he was deployed to Afghanistan as a way to pass time and get people motivated through the tough holiday month of December. It has morphed into a nationwide group on Facebook (#Run4) that raises money for charity, encourages others on their fitness journey, and […]
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2nd Annual EHE Virtual 5K Run/Walk
Registration for this event is over, but if you are interested in purchasing EHE/Just Live merchandise, please contact us at [email protected]. For up-to-date information about this event, visit our Facebook event page: https://www.facebook.com/events/236969163428782 . We encourage you to upload pictures wearing your race shirt. The pictures can be taken before, during, or after the 5K. Your […]
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Strengthening Global Collaboration in Sarcoma: Highlights from the 2025 SPAGN Annual Conference
From April 11–13, 2025, representatives of The EHE Foundation participated in the 15th Annual Conference of the Sarcoma Patient Advocacy Global Network (SPAGN), marking SPAGN’s first conference in the United States. The National Cancer Institute (NCI) co-hosted the event, underscoring the importance of international collaboration in sarcoma advocacy. Denise Robinson commented, “As a long-time supporter […]
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EHE Foundation Hosts EHE Patient Meetup in Washington, D.C.
Five people living with EHE, representing three countries, gathered on Sunday, April 13, 2025, for lunch and camaraderie, marking the first-ever meetup of its kind in the United States. The EHE Foundation was in Washington, D.C. that same weekend to participate in the Sarcoma Patient Advocacy Global Network (SPAGN) Annual Conference, and put out the […]
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Rare Disease Day 2025: Shining a Light on EHE and the Power of Awareness
Every year, on the last day of February, the world comes together to recognize Rare Disease Day—a global movement to raise awareness, promote research, and celebrate the strength of those living with rare conditions. This year, February 28, 2025, marked another powerful opportunity to elevate voices from across the rare disease community. At The EHE […]
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