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Latest EHE News, Events and Research
Science Saturday: EHE Research Progress & Momentum
Join the EHE Foundation for a special Science Saturday on Rare Disease Day, February 28, 2026, 11:00 am – 12:30 pm ET. This virtual event is designed for anyone affected by EHE who wants an up-to-date view of the EHE research landscape. This free, interactive presentation will highlight Foundation-led research, global scientific advances, and the […]
Reflecting on 2025 and Looking Ahead With Purpose
For the global EHE community, 2025 brought challenges, resilience, and momentum. Grounded in connection and a shared commitment to progress in EHE, we look back with emotion, appreciation, and gratitude, and in 2026, we look forward with determination and hope.
Translating molecular mechanisms of EHE to improve patient outcomes
Scientists know that most EHE tumors are caused by specific genetic changes called gene fusions. In most people with EHE, two genes, WWTR1 and CAMTA1, are abnormally fused. In a smaller number of cases, a different fusion involving YAP1 and TFE3 is present. In a recent review published in Critical Reviews in Oncology/Hematology, the authors […]
EHE in Canada: what a national study tells us
A recent study published in the European Journal of Cancer represents the largest collection of data from people with EHE in Canada. Researchers found that EHE can behave very differently from person to person—about one-third of patients were diagnosed by chance and did not need immediate treatment, while others had more aggressive disease. About half […]
Pulmonary EHE: a case report and review of literature
In a recent issue of AME Case Reports, a team led by Dr. Clifford Atuiri describes a case of pulmonary epithelioid hemangioendothelioma (EHE) and places it within the broader understanding of the disease. The authors note that EHE in the lungs can be difficult to diagnose because symptoms and imaging often resemble more common lung […]
Exploring a treatment option for hepatic EHE: subsegmental bland embolization
A recent study published in Cancer Control describes a treatment approach for hepatic (liver) EHE called subsegmental bland embolization, which blocks blood flow to individual tumors. In three patients with multiple liver tumors, most treated tumors shrank significantly, and the disease was initially controlled in all patients. The procedure was well tolerated, with no serious […]
The Pledge: Edition 28, Q1 – Jan-Mar, 2022
Together, the US, UK, and Australia EHE foundations team up to strengthen the force against EHE. This group provides a quarterly update, which is led by the UK and includes research news, patient and fundraising stories, and much more! Click here to view the most recent edition of our online EHE newsletter, The Pledge.
EHE Biobank: Patients Powering Research
You didn’t choose to have cancer, but you can make a difference in how the world fights it. Join Patty Cogswell, EHE Biobank Coordinator, in an informal, interactive conversation on the questions, challenges and benefits of donating tissue and fluids to the EHE Biobank. Learn how YOUR contributions can directly power research and help us […]
Who am I now? Integrating the cancer identity into the self.
You are invited to the EHE Community Connections session on Saturday, May 14th, at 11:00 AM Eastern Time (US). Dr. Tamara Vesel and Dr. Maeve Baechler will be facilitating the discussion and exploring questions like Why is it important to contemplate on identify after the cancer diagnosis. How does the issue of identity relates to symptoms during cancer treatment? Ups and down of resisting versus incorporating cancer diagnosis into one’s life.