One-in-a-million people are living with EHE worldwide.

Our mission is to find treatments and a cure for this rare cancer by advancing research and driving collaboration between patients, researchers, and clinicians.

We envision a world where Epithelioid Hemangioendothelioma (EHE) is easily diagnosed and treatable. Join our dedicated community by subscribing to our emails.

Patient-Powered EHE Research

EHE Global Patient Registry

The EHE Global Patient Registry empowers people with Epithelioid Hemangioendothelioma (EHE) to join together to improve our understanding of this ultra-rare sarcoma. We need every EHE patient to join this critical tool used to support researchers searching for treatments and a cure for EHE.

EHE Biobank

Patients are the key to finding new treatments for EHE! Researchers need tumor tissue and fluid from EHE patients to understand disease progression and speed the development of new drugs and therapies.

As the leading research advocacy organization dedicated to finding treatments and a cure for epithelioid hemangioendothelioma (EHE), the EHE Foundation is committed to funding innovative and transformative research that will improve outcomes for individuals diagnosed with EHE.

Latest EHE News, Events and Research

The Pledge: Edition 41, Q2 - April-June, 2025

The Pledge: Edition 41, Q2 – April-June, 2025

By The EHE Foundation | August 21, 2025

Publication of The Pledge quarterly newsletter is led by the EHE Rare Cancer Charity (UK). EHE patient advocacy groups from around the globe provide content including research news, patient and fundraising stories, and much more. Click here to view the most recent edition of the online EHE newsletter, The Pledge.

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Tissue donation through the EHE Biobank

What You Need to Know About Tissue Donation

By Seth Haddix | August 21, 2025

By Seth Haddix, PhD | EHE Biobank Coordinator When patients are thinking about surgery, a new biopsy, or other procedure, their minds are filled with decisions and worry. Tissue donation isn’t usually top of mind, and for more common cancers, it is not something we think about as a priority. For an ultra-rare cancer like […]

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EHE Researchers at YAP/TAZ and TEADs Conference in Telluride, CO

Advancing EHE Research at the 9th Annual YAP/TAZ and TEADs Workshop in Telluride, Colorado

By The EHE Foundation | July 17, 2025

The 9th Annual YAP/TAZ and TEADs: At the Crossroads of Cancer workshop took place June 9-13, 2025, in the stunning mountain town of Telluride, Colorado. Hosted by the Telluride Science and Innovation Center and organized by Drs. Guy Weinberg and John Lamar, this unique gathering brought together top-tier researchers and clinicians from academia and industry […]

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Sarah McMullan

Supporting the Next Generation of EHE Researchers: Sarah McMullan of the Lamar Lab Attends International YAP/TAZ Workshop

By The EHE Foundation | July 15, 2025

The EHE Foundation is proud to support the next generation of scientists working to unlock the mysteries of epithelioid hemangioendothelioma (EHE). Recognizing the importance of academic and scientific conferences, the Foundation provides annual support to help young investigators overcome financial barriers that might otherwise prevent them from attending these crucial events. A 2025 Fellowship Travel […]

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2025 EHE Fun Run & Walk

2025 EHE Fun Run & Walk Raises More Than $90,000 for EHE Research!

By The EHE Foundation | July 11, 2025

This Spring, the EHE community showed up stronger than ever for the 2025 EHE Fun Run & Walk, raising an astounding $90,000+ to fund research aimed at improving outcomes in epithelioid hemangioendothelioma (EHE). This marks a record-breaking year for our signature awareness and fundraising event! Each year, the Fun Run & Walk brings together patients, […]

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The Pledge: Edition 40 - January-March, 2025

The Pledge: Edition 40, Q1 – January-March, 2025

By The EHE Foundation | June 16, 2025

Publication of The Pledge quarterly newsletter is led by the EHE Rare Cancer Charity (UK). EHE patient advocacy groups from around the globe provide content including research news, patient and fundraising stories, and much more. Click here to view the most recent edition of the online EHE newsletter, The Pledge.

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EHE patients' voices inform paper on sirolimus for the treatment of EHE.

EHE patients’ voices inform paper on sirolimus for the treatment of EHE.

By The EHE Foundation | March 15, 2024

“The patient perspective on sirolimus for epithelioid hemangioendothelioma (EHE): results of a community survey highlighting the importance of equitable access to treatments” was published on February 25, 2024, in the scientific journal Frontiers in Oncology. In early 2023, EHE patient advocates surveyed the global EHE community to gain patients’ perspectives on sirolimus to generate information […]

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Science Saturday: Patient-Powered EHE Research

Science Saturday: Patient-Powered EHE Research

By The EHE Foundation | March 13, 2024

On Saturday, February 24, 2024, Denise Robinson, Director of Research provided an update to the global EHE community focused on ‘Patient-Powered EHE Research’. Denise highlighted research projects The EHE Foundation is funding and supporting through resources, and projects initiated by the foundation including the EHE Global Patient Registry and EHE Biobank. Denise highlights progress made […]

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Guy Weinberg, MD

Welcome New Board Member Guy Weinberg, MD

By The EHE Foundation | March 11, 2024

The EHE Foundation is delighted to announce that Guy Weinberg, MD, has joined our Board of Directors. Internationally recognized in the field of anesthesiology, he is, importantly, the father of an EHE patient, bringing a multifaceted expert and personal perspective to The EHE Foundation, helping us advance our mission to find effective treatments for this […]

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