2025 EHE Fun Run & Walk

Registration is Open Through April 30th

Here's what you need to know:

  • There is no set event date!* It’s an event where everyone can participate in their own way, united by a common goal, no matter where they are.
  • Register by April 30th to receive your T-shirt in early May.

*If you are registering for a team holding an in-person event, contact your Team Captain for the date, time, and location of the event. If you're not sure, email Maggie Cameron for help!

Additional Information:
  • T-shirts and giveaways are not guaranteed for registrations made after April 30th.
  • Be sure read the FAQs. We've added some new ones!
About the Event

The EHE Fun Run & Walk is a flexible and inclusive event where participants register online and complete the run or walk on their own schedule and in their preferred location. Whether you choose to run, walk, or simply gather with friends and family, this event is all about coming together to support a shared cause. There is no set event date!* However, many participants choose to form teams and organize local, in-person events to make the experience even more meaningful. It’s an event where everyone can participate in their own way, united by a common goal, no matter where they are.

Our most anticipated awareness and fundraising event of the year brings communities together to support patients, raise awareness about EHE, and generate critical funds for advancing EHE research. Last year, the 8th Annual EHE Fun Run & Walk welcomed more than 1380 participants and nearly $80,000 toward impactful EHE research.

Each registration includes:
2025 Fun Run & Walk t-shirt and other giveaways

Teams

Team Bridget Zito

Creating a team can be an empowering way to connect with your community. Bring your family, friends, neighbors, and co-workers into our virtual event and make it your own. Together, awareness is raised and critical research is funded as we imagine a bright future for everyone affected by EHE.

How to Create a Team

This year, creating a team is easier than ever! Built into the registration process, you can name your team, upload photos, and share your story on your team page. Share your team page link with your community to rally team members and donors. The best part is that you'll see your team's progress and milestones.

Team FAQs have been added below to help answer common questions. We are here to help every step of the way. Contact Maggie Cameron if you'd like help with team registration.

team-incentives-1600

Team Incentives

Team Captain apparel is in Irish Green this year. Both items have "TEAM CAPTAIN" on the back, free from sponsor logos.

  • $500 in combined team registrations and donations earns the Heathered Irish Green Team Captain T-shirt.
  • $2000 in combined team registrations and donations earns the Irish Green Team Captain Hoodie.

Event Sponsors

We thank our generous sponsors for their support and commitment to our mission to find treatments and a cure for EHE.

Gold Sponsor

Silver Sponsors

Bronze Sponsors

General FAQs

Team FAQs

2024 EHE Fun Run & Walk Event Photos