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Latest EHE News, Events and Research
EHE Circle of Friends Monthly Giving Program Kicks Off!
We invite you to join our Circle of Friends! With so much uncertainty around us, your consistent support means more than ever. Why a monthly giving campaign? It’s Sustained Support: Monthly gifts allow us to predict our donations and plan ahead by expanding research and strengthen The EHE Foundation It’s a Community: Becoming an EHE […]
EHE Highlighted in Recent Cancer Today Article
For their Fall 2020 issue of Cancer Today magazine, the American Association of Cancer Research profiled our director, Medha Deoras-Sutliff! Medha talks about her own journey and how she came to work with The EHE Foundation. Ever the diligent advocate, she insisted the writer include some information about EHE. Read the full article here!
Stay up to Date on EHE by Reading The Pledge: Edition 21, Q2 – Apr-Jun, 2020
Click here to read the Pledge: Edition 20, Q2 – Apr-Jun, 2020
EHE Virtual Community Conference – April 25, 2020
You are important to us! The EHE Foundation invites its patient community to view our first Virtual Community Conference! Learn who we are, what we do, and most importantly, how we address the challenges COVID-19 presents to our work and to EHE research. To view the recording, please click here:
Medha Sutliff Profiled by Global Genes
Our own Executive Director, Medha Sutliff was profiled by Global Genes Rare Foundation Alliance as a RARE Leader. Click here to read Medha’s full profile!
Stay up to Date on EHE by Reading The Pledge: Edition 20, Q1 – Jan-Mar, 2020
Click here to read the Pledge: Edition 20, Q1 – Jan-Mar, 2020
Science Saturday: EHE Research Progress & Momentum
Join the EHE Foundation for a special Science Saturday on Rare Disease Day, February 28, 2026, 11:00 am – 12:30 pm ET. This virtual event is designed for anyone affected by EHE who wants an up-to-date view of the EHE research landscape. This free, interactive presentation will highlight Foundation-led research, global scientific advances, and the […]
Reflecting on 2025 and Looking Ahead With Purpose
For the global EHE community, 2025 brought challenges, resilience, and momentum. Grounded in connection and a shared commitment to progress in EHE, we look back with emotion, appreciation, and gratitude, and in 2026, we look forward with determination and hope.
Translating molecular mechanisms of EHE to improve patient outcomes
Scientists know that most EHE tumors are caused by specific genetic changes called gene fusions. In most people with EHE, two genes, WWTR1 and CAMTA1, are abnormally fused. In a smaller number of cases, a different fusion involving YAP1 and TFE3 is present. In a recent review published in Critical Reviews in Oncology/Hematology, the authors […]