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With the generosity, heart, and determination of the EHE community and the EHE Foundation Board of Directors, we raised more than $155,000 — and counting — for EHE Research this Giving Tuesday! In a world with so many urgent needs, we are profoundly grateful for how this community continues to show up for one another to advance our mission of finding treatments and a cure for EHE. Thank you!
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Latest EHE News, Events and Research
Stay up to Date on EHE by Reading The Pledge: Edition 17, Q2 – April-June, 2019
Click here to read the Pledge: Edition 17, Q2 – April-June, 2019
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The EHE Foundation and Cleveland Clinic Receive $1M Research Gift from the Margie and Robert E. Petersen Foundation
FOR IMMEDIATE RELEASE Contact: LeeAnn Conner, [email protected] Fundraising across the world will secure additional $1M through a matching grant from the Petersen Foundation August 15, 2019 (Hobart, WI): The EHE Foundation and Cleveland Clinic received a major gift from the Margie and Robert E. Petersen Foundation. One million dollars will be donated to Cleveland Clinic […]
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4th EHE 5K Virtual 5K Run/Walk a Huge Success!
Once again many individuals and small groups of families and friends joined together in neighborhoods, parks, or local trails all over the nation to participate in the 4th Annual EHE 5K Virtual 5K Run/Walk. We surpassed our goal (to exceed last year’s participants) by leaps and bounds with 1,006 participants and $47,538 raised of which […]
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Stay up to Date on EHE by Reading The Pledge: Edition 16, Q1 – Jan-Mar, 2019
Click here to read the Pledge: Edition 16, Q1 – Jan-Mar, 2019
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REGISTRATION IS NOW CLOSED FOR OUR 4th ANNUAL EHE VIRTUAL 5K BUT T-SHIRTS STILL AVAILABLE!
Although most participants already completed their 5K, registration for the 4th Annual EHE Virtual 5K will remain open until all shirts are sold. Click here for more information. 100% of the donations and profits from this event will be dedicated to EHE research. We hope you’ll join us to make a difference as we look […]
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EHE Informational Bifold
During this past week, we have featured several touching stories of those affected by EHE (see below). These stories have one thing in common, which all EHE patients can relate to: there are no standard treatments for EHE. Money raised by The EHE Foundation during #Giving Tuesday (Nov 27th) will address this common issue and […]
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The EHE Foundation Welcomes Kristianne Oristian, PhD, as Director of Research & Engagement
The EHE Foundation is proud to announce the appointment of Kristianne (“Kristi”) Oristian, PhD, as our new Director of Research & Engagement. In this role, Kristi will work closely with Executive Director Denise Robinson, who previously led both organizational and research strategy, to advance the Foundation’s mission and strengthen our growing impact in the global […]
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Advancing EHE Research on the Global Stage: Highlights from CTOS 2025
The EHE Foundation had the privilege of attending the CTOS 2025 Annual Meeting, held November 12-15, in Boca Raton, Florida. The Connective Tissue Oncology Society (CTOS) is a global, professional medical organization of clinician-scientists, translational researchers, and patient advocates united by a single goal: advancing treatment of sarcomas. For the EHE community, this annual gathering […]
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The Pledge: Edition 42, Q3 – July-September, 2025
Publication of The Pledge quarterly newsletter is led by the EHE Rare Cancer Charity (UK). EHE patient advocacy groups from around the globe provide content including research news, patient and fundraising stories, and much more. Click here to view the most recent edition of the online EHE newsletter, The Pledge.
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