One-in-a-million people are living with EHE worldwide.

Our mission is to find treatments and a cure for this rare cancer by advancing research and driving collaboration between patients, researchers, and clinicians.

We envision a world where Epithelioid Hemangioendothelioma (EHE) is easily diagnosed and treatable. Join our dedicated community by subscribing to our emails.

EHE Biobank

Patients Powering Research for EHE

Patients are the key to finding new treatments for EHE! Researchers need tumor tissue and fluid from EHE patients to understand disease progression and speed the development of new drugs and therapies.

EHE Global Patient Registry

Patients Powering Research for EHE

The EHE Global Patient Registry empowers people with Epithelioid Hemangioendothelioma (EHE) to join together to improve our understanding of this ultra-rare sarcoma. We need every EHE patient to join this critical tool used to support researchers searching for treatments and a cure for EHE.

Consensus Paper on EHE Management

The Consensus Paper is a powerful, EHE-specific resource for patients, caregivers, and medical professionals that answers critical questions regarding diagnosis and treatment. Patients are encouraged to read it to better understand EHE and facilitate more informed discussions and decision-making with medical teams.

Patient Services

Whether you are newly diagnosed or have been living with EHE for a while, you are not alone. The EHE Community is stronger together and includes patients, their families and friends, and the many specialists working tirelessly to find treatments and a cure.

Visit Patient Services for resources, education, and support for patients and their caregivers.

Latest EHE News, Events and Research

The Pledge Q3

Stay up to Date on EHE by Reading The Pledge: Edition 22, Q3 – Jul-Sep, 2020

By The EHE Foundation | November 10, 2020

Click here to read the Pledge: Edition 20, Q3 – Jul-Sep, 2020

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EHE Circle of Friends

EHE Circle of Friends Monthly Giving Program Kicks Off!

By The EHE Foundation | October 27, 2020

We invite you to join our Circle of Friends! With so much uncertainty around us, your consistent support means more than ever. Why a monthly giving campaign? It’s Sustained Support: Monthly gifts allow us to predict our donations and plan ahead by expanding research and strengthen The EHE Foundation It’s a Community: Becoming an EHE […]

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EHE Highlighted in Recent Cancer Today Article

By The EHE Foundation | October 13, 2020

For their Fall 2020 issue of Cancer Today magazine, the American Association of Cancer Research profiled our director, Medha Deoras-Sutliff! Medha talks about her own journey and how she came to work with The EHE Foundation. Ever the diligent advocate, she insisted the writer include some information about EHE. Read the full article here!

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The Pledge Q2 2020

Stay up to Date on EHE by Reading The Pledge: Edition 21, Q2 – Apr-Jun, 2020

By The EHE Foundation | July 1, 2020

Click here to read the Pledge: Edition 20, Q2 – Apr-Jun, 2020

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EHE Foundation Virtual Conference

EHE Virtual Community Conference – April 25, 2020

By The EHE Foundation | May 26, 2020

You are important to us! The EHE Foundation invites its patient community to view our first Virtual Community Conference! Learn who we are, what we do, and most importantly, how we address the challenges COVID-19 presents to our work and to EHE research. To view the recording, please click here:

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Medha Deoras-Sutliff

Medha Sutliff Profiled by Global Genes

By The EHE Foundation | April 9, 2020

Our own Executive Director, Medha Sutliff was profiled by Global Genes Rare Foundation Alliance as a RARE Leader. Click here to read Medha’s full profile!

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EHE community donations expand grant.

Planting Seeds for Future Developments: EHEF Research Grant Grows

By The EHE Foundation | June 14, 2024

The EHE Foundation invests in novel EHE research yearly through its EHE Research Grants Program. The program officially began in 2021, with only a few applicants interested in EHE research. Today, 10 applicants have submitted proposals in our 2024 grants cycle.  Along the way, we have had the good fortune to meet and collaborate with […]

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Ikena Oncology's IK-930 Trial Discontinued

Ikena Oncology IK-930 Update

By The EHE Foundation | June 7, 2024

On May 28, 2024, Ikena Oncology announced they are discontinuing the development of IK-930. We share your frustration and disappointment and understand the devastating impact felt by patients. Following this announcement, we met with Ikena to impress upon them the urgency and importance that patients deriving benefits from IK-930 continue to have access to the […]

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EHE Mental Health Awareness

Navigating the Mental Health Challenges of an EHE Diagnosis and Treatment

By The EHE Foundation | May 30, 2024

A cancer diagnosis can be one of the most daunting experiences in life, not just physically, but mentally and emotionally as well. The journey through diagnosis, treatment, and everything in between often feels like a roller coaster, filled with uncertainty, fear, and a range of intense emotions. It’s important to acknowledge these challenges and find […]

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