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The EHE Foundation invests in innovative science and discovery that aims to find better treatments and a cure for EHE. These investments enable collaboration across diseases and scientific domains. See how the EHE Foundation advances EHE research by supporting scientists attending the YAP/TAZ and TEAD: At the Crossroads of Cancer workshop in Telluride, CO.
A short film produced, directed, and edited by Joy Weinberg.
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Latest EHE News, Events and Research
PUSH Project: Pushing Ultra-Rare Sarcoma Beyond Hope
Under the umbrella of the Connective Tissue Oncology Society (CTOS) Ultra-rare Sarcoma Working Group, a broad group representing the global sarcoma community, including clinicians, scientists, patient advocates, and non-profit organizations, has come together to form PUSH (Pushing Ultra-Rare Sarcomas Beyond Hope). This consortium has been established to collect and make the best use of all […]
EHE patients’ voices inform paper on sirolimus for the treatment of EHE.
“The patient perspective on sirolimus for epithelioid hemangioendothelioma (EHE): results of a community survey highlighting the importance of equitable access to treatments” was published on February 25, 2024, in the scientific journal Frontiers in Oncology. In early 2023, EHE patient advocates surveyed the global EHE community to gain patients’ perspectives on sirolimus to generate information […]
Science Saturday: Patient-Powered EHE Research
On Saturday, February 24, 2024, Denise Robinson, Director of Research provided an update to the global EHE community focused on ‘Patient-Powered EHE Research’. Denise highlighted research projects The EHE Foundation is funding and supporting through resources, and projects initiated by the foundation including the EHE Global Patient Registry and EHE Biobank. Denise highlights progress made […]
Welcome New Board Member Guy Weinberg, MD
The EHE Foundation is delighted to announce that Guy Weinberg, MD, has joined our Board of Directors. Internationally recognized in the field of anesthesiology, he is, importantly, the father of an EHE patient, bringing a multifaceted expert and personal perspective to The EHE Foundation, helping us advance our mission to find effective treatments for this […]
Rare Disease Day 2024
Rare Disease Day was February 29th, a very special rare day! We asked our community to help us build EHE awareness by submitting their EHE stories so that we could share them on our social media platforms and website to shine a light on EHE and rare diseases! Throughout the month, we shared the stories […]
“Shakedown for Steve” Gives $20,000 in Memory of Steve Walsh, Jr.
What started as a GoFundMe page to help Steve Walsh with EHE-related medical expenses turned into a memorial as he lost his 10-month battle with EHE on September 22, 2023. From the Southside of Chicago, Steve is remembered for his love of life, sports, and the people closest to him. His sister, Jessica shared, “On […]
Inside 2026 YAP/TAZ and TEAD: At the Crossroads of Cancer, and Why It Matters for EHE
This summer, EHE Foundation Executive Director, Denise Robinson, traveled to Telluride, Colorado, for YAP/TAZ and TEAD: At the Crossroads of Cancer, an annual scientific workshop dedicated to one of the most promising areas of EHE research today. It was the first time the EHE Foundation had a seat at this particular table, bringing the patient’s […]
Meet the 2026 Recipient of the EHE Foundation’s Fellowship Travel Grant: Sarah McMullan
Sarah McMullan is a PhD candidate studying epithelioid hemangioendothelioma (EHE) in Dr. John Lamar’s laboratory, in the Department of Molecular and Cellular Physiology at Albany Medical College. This summer, the EHE Foundation awarded her a Fellowship Travel Grant for the second year in a row, allowing her to return to YAP/TAZ and TEAD: At the […]
Retrospective study from Charité–Universitätsmedizin Berlin, Germany
A new retrospective study from Charité–Universitätsmedizin Berlin describes 41 people with EHE treated at the center between 1997 and 2022, offering a single-center picture of EHE presentation and outcomes. It was published in the Journal of Cancer Research and Clinical Oncology in July 2026. In this report, women made up the majority of cases (61%), […]