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Latest EHE News, Events and Research
July is Sarcoma Awareness Month – Support Our Mission With a Monthly Donation
As we spread sarcoma awareness this month, we ask you to consider a monthly donation. A recurring donation creates a BIG impact in a rare sarcoma, like EHE. We’ve set a goal of 10 new monthly donors! Will you join our Circle of Friends? It’s very affordable and connects you to our small, but mighty […]
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TEAD Talk – The Pursuit of a Treatment and Cure for EHE
Thanks to David Casimir, PhD, JD, for his informative patient-level presentation on June 17, 2023, that addressed the questions: What is the Hippo pathway and TEAD? How do they relate to EHE? How are they being used to develop EHE treatments? How do these treatments move from the laboratory, through clinical trials, to patient care? […]
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2023 Fun Run Event Breaks Record
Thank you to every sponsor, participant, and donor, for helping us make the 2023 EHE Fun Run and Walk the LARGEST in our history with 1,156 registrations and more than 60 teams! Registration for the event went through the month of April and supporters participated in the virtual event across the country mostly in May […]
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The Pledge: Edition 32, Q1 – January-March, 2023
Publication of The Pledge quarterly newsletter is led by the EHE Rare Cancer Charity (UK). EHE patient advocacy groups from around the globe. provide content including research news, patient and fundraising stories, and much more! Click here to view the most recent edition of our online EHE newsletter, The Pledge.
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2023 EHE Research Grants – Funding Impactful Projects That Support Our Mission
The EHE Foundation seeks to support and fund the most promising basic, translational, and clinical research that will expand our current understanding of EHE and accelerate the development of treatments, and a cure for EHE. Each year, the Foundation initiates a new Research Grants Cycle, inviting researchers and clinician scientists from around the world to […]
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Highlights From ASCO 2023
Our Director of Research, Denise Robinson, attended the American Society of Clinical Oncology (ASCO) 2023 Annual Meeting and the Sarcoma Alliance for Research through Collaboration (SARC) Semi-annual Meeting in Chicago, IL, in early June. Over 30,000 people joined together in person to conquer cancer! ASCO is the world’s leading organization for oncology, bringing together clinicians, […]
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New Study Uncovers Unexpected Role for AMPK in EHE
A project funded by the EHE Foundation, the EHE Rare Cancer Charity (UK), and the EHE Rare Cancer Foundation Australia, and led by Dr. Ryan Kanai in the Lamar Lab, was recently published in Cancers, revealing a surprising new role for AMPK in controlling the growth of EHE cells. Dr. Kanai set out to find […]
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EHE Advocates Unite to Navigate Complexities of Drug Development
We are thrilled to share a new publication that includes participation of EHE advocacy organizations: “How to foster new treatment development in ultra-rare tumours? Joint EMA-EORTC multi-stakeholder workshops on ultra-rare sarcomas as a model for rare cancers.” Leaders of the EHE Rare Cancer Charity (UK), the EHE Foundation, and EHE ITALIA Associazione Non Solo Laura […]
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Preclinical Evidence Supporting the Therapeutic Potential of Statins in EHE
In 2022, the EHE Foundation funded the Lamar Lab’s project entitled ‘Use of Pre-clinical EHE Models to Identify Druggable Pathways to Treat EHE,’ with the goal of identifying FDA-approved drugs that can be repurposed to treat EHE. By looking for drugs that are already FDA-approved, ideally, positive pre-clinical findings could be more rapidly translated to […]
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