One-in-a-million people are living with EHE worldwide.

Our mission is to find treatments and a cure for this rare cancer by advancing research and driving collaboration between patients, researchers, and clinicians.

We envision a world where Epithelioid Hemangioendothelioma (EHE) is easily diagnosed and treatable. Join our dedicated community by subscribing to our emails.

Patient-Powered Research

Patients Powering Research for Epithelioid Hemangioendothelioma

EHE Global Patient Registry

The EHE Global Patient Registry empowers people with Epithelioid Hemangioendothelioma (EHE) to join together to improve our understanding of this ultra-rare sarcoma.

EHE Biobank

Patients are the key to finding new treatments for EHE! Researchers need tumor tissue, blood and fluid from EHE patients to understand disease progression and speed development of new drugs and therapies.

Patient Services

Whether you are newly diagnosed or have been living with EHE for a while, you are not alone. The EHE Community is stronger together and includes patients, their families and friends and the many specialists working tirelessly to find treatments and a cure. 

Latest EHE News, Events and Research

EHE Foundation Advisory Board

The EHE Foundation Advisory Board Annual Meeting

By The EHE Foundation | July 17, 2022

The EHE Foundation’s Advisory (Ad) Board met with the Foundation’s research team in June for their annual meeting. The Ad Board is composed of nine renowned clinicians and researchers who generously give their time and talents to advise The Foundation, in addition to the countless hours they spend during their ‘day jobs’ with patients, research […]

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Dr. Tamara Vesel & Dr. Maeve Baechler

Continued Discussion on Integrating Cancer Identity Into the Self

By The EHE Foundation | June 23, 2022

Drs. Vesel and Baechler facilitated our very first Community Connections event on May 14th. The topic was, “Who am I now? Integrating the cancer identity into the self.” Attendees discussed their own experiences with their diagnosis and how they’ve incorporated EHE into their identities. This will be a continuation of that topic and more! Dr. Vesel is […]

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Jane Gutkovich, EHE Foundation Board Member Emeritus

What Happened at ASCO? EHE Update with Jane Gutkovich

By The EHE Foundation | June 23, 2022

Jane is one of the founders of The EHE Foundation, and currently in the role of distinguished Board Member Emeritus. In this role, Jane works strategically with us to continue to support patients worldwide and recruit researchers to EHE. Jane recently attended the 2022 American Society of Clinical Oncology Meeting held annually in Chicago, IL. […]

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The Pledge Q1 2022

The Pledge: Edition 28, Q1 – Jan-Mar, 2022

By The EHE Foundation | June 8, 2022

Together, the US, UK, and Australia EHE foundations team up to strengthen the force against EHE. This group provides a quarterly update, which is led by the UK and includes research news, patient and fundraising stories, and much more! Click here to view the most recent edition of our online EHE newsletter, The Pledge.

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Patty Cogswell, EHE Biobank Coordinator

EHE Biobank: Patients Powering Research

By The EHE Foundation | June 7, 2022

You didn’t choose to have cancer, but you can make a difference in how the world fights it. Join Patty Cogswell, EHE Biobank Coordinator, in an informal, interactive conversation on the questions, challenges and benefits of donating tissue and fluids to the EHE Biobank. Learn how YOUR contributions can directly power research and help us […]

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Dr. Tamara Vesel & Dr. Maeve Baechler

Who am I now? Integrating the cancer identity into the self.

By The EHE Foundation | June 7, 2022

You are invited to the EHE Community Connections session on Saturday, May 14th, at 11:00 AM Eastern Time (US). Dr. Tamara Vesel and Dr. Maeve Baechler will be facilitating the discussion and exploring questions like Why is it important to contemplate on identify after the cancer diagnosis. How does the issue of identity relates to symptoms during cancer treatment? Ups and down of resisting versus incorporating cancer diagnosis into one’s life.

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Community Connections: Help is on the way! Non-pharmacologic Management of Cancer Pain

Help is on the way! Non-pharmacologic Management of Cancer Pain

By The EHE Foundation | April 16, 2024

Join Dr. Tamara Vesel, Chief of Palliative Care at Tufts Medical Center in Boston, MA, and her Research Assistant, MD/MPH candidate, Abigail Lebowitz for an interactive session exploring the topic of non-pharmacological management of cancer pain. Dr. Vesel is a globally recognized palliative care specialist with expertise in pain and symptom management, integrative medicine, clinical […]

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EHE Advocates at the ESMO Congress 2024

EHE Advocates at the ESMO Sarcoma and Rare Cancers Congress 2024

By The EHE Foundation | March 29, 2024

In March Denise Robinson, Director of Research for The EHE Foundation attended the ESMO Sarcoma and Rare Cancers Congres 2024 in Lugano, Switzerland. This congress brought together world-renowned experts including researchers and clinicians, to present and discuss the latest advancements in the treatment of sarcomas and rare cancers.  Topics ranged from the role of immune […]

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PUSH Project: Pushing Rare Sarcoma Beyond Hope

PUSH Project: Pushing Rare Sarcoma Beyond Hope

By The EHE Foundation | March 29, 2024

Under the umbrella of the Connective Tissue Oncology Society (CTOS), the Ultra-rare Sarcoma Working Group, a broad group representing the global sarcoma community, including clinicians, scientists, patient advocates, and non-profit organizations has come together to establish a consortium, PUSH, to collect and make the best use of all available evidence to facilitate the development of […]

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