One-in-a-million people are living with EHE worldwide.

Our mission is to find treatments and a cure for this rare cancer by advancing research and driving collaboration between patients, researchers, and clinicians.

We envision a world where Epithelioid Hemangioendothelioma (EHE) is easily diagnosed and treatable. Join our dedicated community by subscribing to our emails.

Patient-Powered EHE Research

EHE Biobank

Patients are the key to finding new treatments for EHE! Researchers need tumor tissue and fluid from EHE patients to understand disease progression and speed the development of new drugs and therapies.

Patient-Powered EHE Research

EHE Global Patient Registry

The EHE Global Patient Registry empowers people with Epithelioid Hemangioendothelioma (EHE) to join together to improve our understanding of this ultra-rare sarcoma. We need every EHE patient to join this critical tool used to support researchers searching for treatments and a cure for EHE.

Latest EHE News, Events and Research

EHE Researchers at YAP/TAZ and TEADs Conference in Telluride, CO

Advancing EHE Research at the 9th Annual YAP/TAZ and TEADs Workshop in Telluride, Colorado

By The EHE Foundation | July 17, 2025

The 9th Annual YAP/TAZ and TEADs: At the Crossroads of Cancer workshop took place June 9-13, 2025, in the stunning mountain town of Telluride, Colorado. Hosted by the Telluride Science and Innovation Center and organized by Drs. Guy Weinberg and John Lamar, this unique gathering brought together top-tier researchers and clinicians from academia and industry […]

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Sarah McMullan

Supporting the Next Generation of EHE Researchers: Sarah McMullan of the Lamar Lab Attends International YAP/TAZ Workshop

By The EHE Foundation | July 15, 2025

The EHE Foundation is proud to support the next generation of scientists working to unlock the mysteries of epithelioid hemangioendothelioma (EHE). Recognizing the importance of academic and scientific conferences, the Foundation provides annual support to help young investigators overcome financial barriers that might otherwise prevent them from attending these crucial events. A 2025 Fellowship Travel […]

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2025 EHE Fun Run & Walk

2025 EHE Fun Run & Walk Raises More Than $90,000 for EHE Research!

By The EHE Foundation | July 11, 2025

This Spring, the EHE community showed up stronger than ever for the 2025 EHE Fun Run & Walk, raising an astounding $90,000+ to fund research aimed at improving outcomes in epithelioid hemangioendothelioma (EHE). This marks a record-breaking year for our signature awareness and fundraising event! Each year, the Fun Run & Walk brings together patients, […]

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ASCO 2025 Recap

ASCO 2025 Recap: Advancing Research to Conquer Cancer

By The EHE Foundation | June 8, 2025

Denise Robinson, EHE Foundation Executive Director and Director of Research, had the privilege of representing the Foundation at the 2025 ASCO Annual Meeting in Chicago, where tens of thousands of global oncology professionals gathered to share knowledge with a purposeful commitment to conquer cancer.  The American Society of Clinical Oncology (ASCO) is the world’s leading […]

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The EHE Foundation Welcomes Two New Board Members

The EHE Foundation Welcomes Two New Board Members

By The EHE Foundation | June 5, 2025

The EHE Foundation is proud to announce the addition of two new members to our Board of Directors: Hollace D. Leppert, DO, FACOI, and Krista Sheeley, BSN, RN. Both bring extensive healthcare experience, leadership, and passion to our mission. We are excited to welcome them to the EHE Foundation and look forward to their insight, […]

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2025 EHE 360 Global Patient Conference

Celebrating Progress and Hope: 2025 EHE 360 Global Patient Conference Recap

By The EHE Foundation | June 3, 2025

The EHE Foundation is proud to celebrate the success of the 2025 EHE 360 Global Patient Conference, a truly transformative event that brought together the global EHE community for learning, collaboration, and connection. Over 200 participants from a record 25 countries were united by a common mission to drive progress in EHE research, treatment, and […]

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The EHE Foundation Receives $10,000 Donation

By The EHE Foundation | September 26, 2016

The Bock Foundation, the philanthropic arm of Ernest Bock & Sons, Inc., a construction and hospitality conglomerate in Pennsylvania, has been making substantial contributions to charitable causes for decades. Back in 1992, a Bock employee was tragically killed in an automobile accident. The Bock family aided in funeral expenses, and quickly realized the organization could […]

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1st Annual EHE Virtual 5K Run/Walk

1st Annual EHE Virtual 5K Run/Walk

By The EHE Foundation | May 26, 2016

This run/walk is an all ages and abilities event for EHE. EHE is short for Epithelioid Hemangioendothelioma, an extremely rare and often deadly vascular sarcoma (cancer) that primarily affects adolescents and young adults. This event is “virtual”, which means it can be done anywhere you are. You can complete the 3.1 miles by running, walking, […]

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Hope Gala

Fighting with Laughter – The EHE Foundation and The Hope Gala

By The EHE Foundation | January 8, 2016

Saturday, January 30, 2016 2:30 PM Gotham Comedy Club – The Vintage Lounge 208 W 23rd St New York, NY 10011 Click here for tickets! Mandy O’Connor, a Penn State graduate and THON participant, fought Epithelioid Hemangioendothelioma (EHE) for more than a decade. EHE is a rare and often deadly vascular sarcoma (cancer) that largely […]

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