One-in-a-million people are living with EHE worldwide.

Our mission is to find treatments and a cure for this rare cancer by advancing research and driving collaboration between patients, researchers, and clinicians.

We envision a world where Epithelioid Hemangioendothelioma (EHE) is easily diagnosed and treatable. Join our dedicated community by subscribing to our emails.

EHE Biobank

Patients Powering Research for EHE

Patients are the key to finding new treatments for EHE! Researchers need tumor tissue and fluid from EHE patients to understand disease progression and speed the development of new drugs and therapies.

EHE Global Patient Registry

Patients Powering Research for EHE

The EHE Global Patient Registry empowers people with Epithelioid Hemangioendothelioma (EHE) to join together to improve our understanding of this ultra-rare sarcoma. We need every EHE patient to join this critical tool used to support researchers searching for treatments and a cure for EHE.

Consensus Paper on EHE Management

The Consensus Paper is a powerful, EHE-specific resource for patients, caregivers, and medical professionals that answers critical questions regarding diagnosis and treatment. Patients are encouraged to read it to better understand EHE and facilitate more informed discussions and decision-making with medical teams.

Patient Services

Whether you are newly diagnosed or have been living with EHE for a while, you are not alone. The EHE Community is stronger together and includes patients, their families and friends, and the many specialists working tirelessly to find treatments and a cure.

Visit Patient Services for resources, education, and support for patients and their caregivers.

Latest EHE News, Events and Research

EHE community donations expand grant.

Planting Seeds for Future Developments: EHEF Research Grant Grows

By The EHE Foundation | June 14, 2024

The EHE Foundation invests in novel EHE research yearly through its EHE Research Grants Program. The program officially began in 2021, with only a few applicants interested in EHE research. Today, 10 applicants have submitted proposals in our 2024 grants cycle.  Along the way, we have had the good fortune to meet and collaborate with […]

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Ikena Oncology's IK-930 Trial Discontinued

Ikena Oncology IK-930 Update

By The EHE Foundation | June 7, 2024

On May 28, 2024, Ikena Oncology announced they are discontinuing the development of IK-930. We share your frustration and disappointment and understand the devastating impact felt by patients. Following this announcement, we met with Ikena to impress upon them the urgency and importance that patients deriving benefits from IK-930 continue to have access to the […]

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EHE Mental Health Awareness

Navigating the Mental Health Challenges of an EHE Diagnosis and Treatment

By The EHE Foundation | May 30, 2024

A cancer diagnosis can be one of the most daunting experiences in life, not just physically, but mentally and emotionally as well. The journey through diagnosis, treatment, and everything in between often feels like a roller coaster, filled with uncertainty, fear, and a range of intense emotions. It’s important to acknowledge these challenges and find […]

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The Pledge Q1 2024

The Pledge: Edition 36, Q1 – January-March, 2024

By The EHE Foundation | May 28, 2024

Publication of The Pledge quarterly newsletter is led by the EHE Rare Cancer Charity (UK). EHE patient advocacy groups from around the globe. provide content including research news, patient and fundraising stories, and much more. Click here to view the most recent edition of our online EHE newsletter, The Pledge.

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EHE Community Connections for Caregivers: I'm part of the story too.

EHE Community Connections for Caregivers: I’m part of the story too.

By Maggie Cameron | May 24, 2024

When a person receives a diagnosis, much of the focus is aimed at the individual, when in fact every aspect of the caregiver’s life is also impacted. Caregivers are a huge part of the story but are often overlooked and undersupported, which leaves them feeling isolated and unseen. Join veteran caregiver and Caregiver Advocate, Allison Breininger, […]

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EHE Community Connections: Help is on the way! Non-pharmacologic Management of Cancer Pain

Help is on the way! Non-pharmacologic Management of Cancer Pain

By The EHE Foundation | April 16, 2024

Join Dr. Tamara Vesel, Chief of Palliative Care at Tufts Medical Center in Boston, MA, and her Research Assistant, MD/MPH candidate, Abigail Lebowitz for an interactive session exploring the topic of non-pharmacological management of cancer pain. Dr. Vesel is a globally recognized palliative care specialist with expertise in pain and symptom management, integrative medicine, clinical […]

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2021 EHE Fun Run & Walk

2021 EHE Fun Run & Walk a Huge Success!

By The EHE Foundation | November 2, 2021

Thank you to our wonderful participants, supporters, and sponsors for making our 2021 EHE Fun Run and Walk a tremendous success! Together, more than 900 supporters across the nation helped raise more than $45,000. Thanks to the backing of our sponsors, every penny brought in for this event will go directly to EHE research. This […]

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EHE Clinical Trials

The EHE Foundation Receives $1M Transformational Gift from the Margie and Robert E. Petersen Foundation

By The EHE Foundation | October 11, 2021

FOR IMMEDIATE RELEASEContact: Medha Deoras-Sutliff, [email protected] Hobart, Wisconsin. (October 12, 2021) — The EHE Foundation announced today that it has received a $1 million award from the Margie and Robert E. Petersen Foundation to drive forward progress towards treatments and a cure for Epithelioid Hemangioendothelioma (EHE), a rare vascular cancer. This support provides capacity-building resources […]

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The Pledge: Edition 26, Q3 – July-Sept, 2021

The Pledge: Edition 26, Q3 – July-Sept, 2021

By The EHE Foundation | September 30, 2021

Together, the US, UK, and Australia EHE foundations team up to strengthen the force against EHE. This group provides a quarterly update, which is led by the UK and includes research news, patient and fundraising stories, and much more! Click here to read this edition of our online EHE newsletter, The Pledge.

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