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The EHE Foundation invests in innovative science and discovery that aims to find better treatments and a cure for EHE. These investments enable collaboration across diseases and scientific domains. See how the EHE Foundation advances EHE research by supporting scientists attending the YAP/TAZ and TEAD: At the Crossroads of Cancer workshop in Telluride, CO.
A short film produced, directed, and edited by Joy Weinberg.
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Latest EHE News, Events and Research
Exciting Progress in EHE Research – Powered by Patients
We are thrilled to share a new publication, “EHE cell cultures are a platform for mechanistic and therapeutic investigation,” made possible by a partnership between the University of Iowa and the EHE Foundation. Under the leadership of Dr. Munir Tanas, Nicholas Scalora, PhD, and colleagues in the Tanas Lab sought to develop long-term EHE cell […]
Uniting for a Cure: A New Chapter in the Fight Against EHE
FOR IMMEDIATE RELEASE Hobart, WI – October 9, 2025 – The Center for Research and Analysis of VAscular Tumors (CRAVAT) Foundation has donated its resources to The EHE Foundation in a powerful alignment of vision and commitment to the people affected by epithelioid hemangioendothelioma (EHE) and the EHE scientific community. Founded in 2015 by Guy […]
Big Steve Day 2025: A Celebration of Life, Friendship, and Giving Back
On Saturday, June 28, 2025, more than 80 golfers, friends, and family gathered at Stony Creek Golf Course in Oak Lawn, Illinois, for the Third Annual Big Steve Day Golf Outing — a day filled with laughter, camaraderie, and purpose. This annual event honors the life and spirit of Steve Walsh, Jr., whose memory continues […]
New Study Uncovers Unexpected Role for AMPK in EHE
A project funded by the EHE Foundation, the EHE Rare Cancer Charity (UK), and the EHE Rare Cancer Foundation Australia, and led by Dr. Ryan Kanai in the Lamar Lab, was recently published in Cancers, revealing a surprising new role for AMPK in controlling the growth of EHE cells. Dr. Kanai set out to find […]
EHE Advocates Unite to Navigate Complexities of Drug Development
We are thrilled to share a new publication that includes participation of EHE advocacy organizations: “How to foster new treatment development in ultra-rare tumours? Joint EMA-EORTC multi-stakeholder workshops on ultra-rare sarcomas as a model for rare cancers.” Leaders of the EHE Rare Cancer Charity (UK), the EHE Foundation, and EHE ITALIA Associazione Non Solo Laura […]
Preclinical Evidence Supporting the Therapeutic Potential of Statins in EHE
In 2022, the EHE Foundation funded the Lamar Lab’s project entitled ‘Use of Pre-clinical EHE Models to Identify Druggable Pathways to Treat EHE,’ with the goal of identifying FDA-approved drugs that can be repurposed to treat EHE. By looking for drugs that are already FDA-approved, ideally, positive pre-clinical findings could be more rapidly translated to […]
Inside 2026 YAP/TAZ and TEAD: At the Crossroads of Cancer, and Why It Matters for EHE
This summer, EHE Foundation Executive Director, Denise Robinson, traveled to Telluride, Colorado, for YAP/TAZ and TEAD: At the Crossroads of Cancer, an annual scientific workshop dedicated to one of the most promising areas of EHE research today. It was the first time the EHE Foundation had a seat at this particular table, bringing the patient’s […]
Meet the 2026 Recipient of the EHE Foundation’s Fellowship Travel Grant: Sarah McMullan
Sarah McMullan is a PhD candidate studying epithelioid hemangioendothelioma (EHE) in Dr. John Lamar’s laboratory, in the Department of Molecular and Cellular Physiology at Albany Medical College. This summer, the EHE Foundation awarded her a Fellowship Travel Grant for the second year in a row, allowing her to return to YAP/TAZ and TEAD: At the […]
Retrospective study from Charité–Universitätsmedizin Berlin, Germany
A new retrospective study from Charité–Universitätsmedizin Berlin describes 41 people with EHE treated at the center between 1997 and 2022, offering a single-center picture of EHE presentation and outcomes. It was published in the Journal of Cancer Research and Clinical Oncology in July 2026. In this report, women made up the majority of cases (61%), […]