Online Source for EHE Information, Research, Community & Donation


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EHE is a puzzling disease for patients, families and providers. Our goal is to provide caring support and information to those affected by this disease.

A new year is the perfect time to reflect on 2018 and look forward to 2019 with encouragement.

Thank you for being part of our EHE family.  We are amazed, inspired, and grateful that you continue to choose to stand alongside us in our commitment to fight EHE.  Your support helps us honor those we’ve lost by continuing to make progress in many facets of our foundation’s mission.

Thank you for being part of our progress.  Although we can’t list every great thing you’ve helped us accomplish in 2018, here are a few highlights.

Together, we:

  • initiated an ongoing multi-institutional international project to ultimately give doctors of EHE patients options for evidence-based treatments.
  • supported research of Dr. Rubin, an EHE expert and world-renowned pathologist and medical researcher of the Cleveland Clinic, who helped lead the trametinib drug trial and continue his ongoing efforts in EHE research.
  • increased awareness of EHE across the nation with supporters, agencies, and medical experts and connected hundreds of EHE patients with experts.
  • added two professionals to our all-volunteer working Board of Directors and increased our volunteer base of committed and compassionate individuals.
  • received a specified grant to hire a professional to ensure the foundation sustains long term capabilities for the future. We’ll introduce her early this year!
  • continued dialogue with experts to seek viable research projects using the most modern and advanced forms of medicine.  Our Advisory Board and research team continues to raise interest in EHE among top scientists.
  • were recognized by the nation’s sarcoma community and are now represented in a formal forum of collaborating sarcoma foundations, titled the Sarcoma Coalition.
  • successfully enhanced the scope of our two annual events.  Over 700 participants joined us on the virtual 5K in April and #GivingTuesday brought in over $87,000 in November!

With your support, we are focused, hopeful, and empowered to continue to make progress in 2019.

Our Annual 5K is only 2 months away!

We'd love for you to join us for this year's virtual 5K.  It will take place at the end of April, but registration will start sometime in February.  This 5K run/walk is for all ages and abilities.  It is also “virtual,” which means it can be done anywhere you are. Stay tuned for details including how to get involved, registration information, and what’s new with the 2019 5K.

Latest EHE News, Events and Research

Brian Frank

Texas Hold ‘Em Fundraiser in Memory of Brian Frank

By The EHE Foundation | August 11, 2015 | Comments Off on Texas Hold ‘Em Fundraiser in Memory of Brian Frank

COME OUT & PLAY: TEXAS HOLD’EM FUND RAISER FOR EHE CANCER RESEARCH IN MEMORY OF OUR SO LOVED AND MISSED, ALWAYS IN OUR HEART ……BRIAN FRANK Saturday, August 29 at 12:30pm in PDT 20838 SE 240th St. Maple Valley WA 98038 EHE or Epithelioid Hemangioendothelioma is a extremely rare vascular cancer that only effects 100 people […]

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Mandy and Devin O'Connor

Mandy O’Connor

By The EHE Foundation | August 5, 2015 | Comments Off on Mandy O’Connor

Mandy O’Connor, a York native, Penn State graduate, and THON participant, fought Epithelioid Hemangioendothelioma (EHE) for more than a decade. EHE is a rare and often deadly vascular sarcoma (cancer) that largely affects adolescents and young adults. Mandy served on planning committees for Relay For Life and volunteered as a Team Captain and routinely spoke […]

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Ava Featured Image

Ava’s Story

By The EHE Foundation | August 4, 2015 | Comments Off on Ava’s Story

Ava is an eight year old girl from Langhorne, PA, where Sesame Place is located. We are about 25 miles from Center City Philadelphia. Ava loves swimming and going to Sesame Place, since it is a water park. Ava loves drawing and takes an Art class on Saturday mornings. She also takes dance class (Hip-Hop) […]

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ASCO Featured Image

ASCO Talks About EHE

By The EHE Foundation | August 4, 2015 | Comments Off on ASCO Talks About EHE

The American Society Clinical Oncologists (ASCO) met in Chicago in May of 2015, for their annual meeting. The theme, Illumination and Innovation: Transforming Data into Learning, aims to improve patient care across the globe through the application of shared knowledge. This is especially important when talking about rare sarcomas. Jane Gutkovich, Vice President of The EHE […]

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Delaney Thank You

A Night out for EHE Research and Team Laney

By The EHE Foundation | August 4, 2015 | Comments Off on A Night out for EHE Research and Team Laney

On Sunday, July 12, 2015, Ernie’s Irish Pub in Escanaba, MI hosted a fundraiser to raise awareness and funds for EHE Research. It was a big success raising $6,705! It was great fun and the participation and support from the local community and businesses was overwhelming!

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EHE Golf Outing

Golf Outing to Benefit The EHE Foundation & Cleveland Clinic Big Sucesss

By The EHE Foundation | June 10, 2015 | 1 Comment

The York EHE Foundation hosted its 1st Annual Golf Outing to benefit the EHE Foundation and Cleveland Clinic on Friday, July 17, 2015. The event was a huge success raising over $17,000 for our cause!   Mandy O’Connor Mandy Elizabeth O’Connor was born in Seoul, South Korea, but became the daughter of Paul and Virginia […]

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EHE Golf Outing

Golf Outing to Benefit The EHE Foundation & Cleveland Clinic

By The EHE Foundation | June 10, 2015 | Comments Off on Golf Outing to Benefit The EHE Foundation & Cleveland Clinic

Any golfers in the York, Pennsylvania area? Devin O’Connor is hosting a golf tournament to benefit EHE Research this summer. If you don’t golf, come out and enjoy a BBQ dinner, silent auction, and other raffles. Delaney and I are going and we would love to fill a table or two with our EHE family […]

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