Online Source for EHE Information, Research, Community & Donation

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EHE is a puzzling disease for patients, families and providers. Our goal is to provide caring support and information to those affected by this disease.

A new year is the perfect time to reflect on 2018 and look forward to 2019 with encouragement.

Thank you for being part of our EHE family.  We are amazed, inspired, and grateful that you continue to choose to stand alongside us in our commitment to fight EHE.  Your support helps us honor those we’ve lost by continuing to make progress in many facets of our foundation’s mission.

Thank you for being part of our progress.  Although we can’t list every great thing you’ve helped us accomplish in 2018, here are a few highlights.

Together, we:

  • initiated an ongoing multi-institutional international project to ultimately give doctors of EHE patients options for evidence-based treatments.
  • supported research of Dr. Rubin, an EHE expert and world-renowned pathologist and medical researcher of the Cleveland Clinic, who helped lead the trametinib drug trial and continue his ongoing efforts in EHE research.
  • increased awareness of EHE across the nation with supporters, agencies, and medical experts and connected hundreds of EHE patients with experts.
  • added two professionals to our all-volunteer working Board of Directors and increased our volunteer base of committed and compassionate individuals.
  • received a specified grant to hire a professional to ensure the foundation sustains long term capabilities for the future. We’ll introduce her early this year!
  • continued dialogue with experts to seek viable research projects using the most modern and advanced forms of medicine.  Our Advisory Board and research team continues to raise interest in EHE among top scientists.
  • were recognized by the nation’s sarcoma community and are now represented in a formal forum of collaborating sarcoma foundations, titled the Sarcoma Coalition.
  • successfully enhanced the scope of our two annual events.  Over 700 participants joined us on the virtual 5K in April and #GivingTuesday brought in over $87,000 in November!

With your support, we are focused, hopeful, and empowered to continue to make progress in 2019.

Our Annual 5K is only 2 months away!

We'd love for you to join us for this year's virtual 5K.  It will take place at the end of April, but registration will start sometime in February.  This 5K run/walk is for all ages and abilities.  It is also “virtual,” which means it can be done anywhere you are. Stay tuned for details including how to get involved, registration information, and what’s new with the 2019 5K.

Latest EHE News, Events and Research

EHE cancer The Pledge

Stay up to Date on EHE by Reading The Pledge: Sixth Edition

By The EHE Foundation | October 30, 2016 | Comments Off on Stay up to Date on EHE by Reading The Pledge: Sixth Edition

EHE is no longer some unknown rare cancer! The grassroots movement to raise awareness and help fund EHE research is now a worldwide effort! Thanks to Hugh Leonard, director of The EHE Rare Cancer Charity UK, for assembling EHE stories for the sixth edition of The Pledge. Download The Pledge here.

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The EHE Foundation Advisory Board

By The EHE Foundation | September 26, 2016 | Comments Off on The EHE Foundation Advisory Board

Meet the Men & Women Fighting EHE in the Lab

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The EHE Foundation Receives $10,000 Donation

By The EHE Foundation | September 26, 2016 | Comments Off on The EHE Foundation Receives $10,000 Donation

The Bock Foundation, the philanthropic arm of Ernest Bock & Sons, Inc., a construction and hospitality conglomerate in Pennsylvania, has been making substantial contributions to charitable causes for decades. Back in 1992, a Bock employee was tragically killed in an automobile accident. The Bock family aided in funeral expenses, and quickly realized the organization could […]

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EHE Run/Walk

1st Annual EHE Virtual 5K Run/Walk

By The EHE Foundation | May 26, 2016 | Comments Off on 1st Annual EHE Virtual 5K Run/Walk

This run/walk is an all ages and abilities event for EHE. EHE is short for Epithelioid Hemangioendothelioma, an extremely rare and often deadly vascular sarcoma (cancer) that primarily affects adolescents and young adults. This event is “virtual”, which means it can be done anywhere you are. You can complete the 3.1 miles by running, walking, […]

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1st Annual EHE Virtual 5K Run/Walk

By The EHE Foundation | May 26, 2016 | Comments Off on 1st Annual EHE Virtual 5K Run/Walk

This run/walk is an all ages and abilities event for EHE. EHE is short for Epithelioid Hemangioendothelioma, an extremely rare and often deadly vascular sarcoma (cancer) that primarily affects adolescents and young adults. This event is “virtual”, which means it can be done anywhere you are. You can complete the 3.1 miles by running, walking, […]

Read More
Hope Gala

Fighting with Laughter – The EHE Foundation and The Hope Gala

By The EHE Foundation | January 8, 2016 | 1 Comment

Saturday, January 30, 2016 2:30 PM Gotham Comedy Club – The Vintage Lounge 208 W 23rd St New York, NY 10011 Click here for tickets! Mandy O’Connor, a Penn State graduate and THON participant, fought Epithelioid Hemangioendothelioma (EHE) for more than a decade. EHE is a rare and often deadly vascular sarcoma (cancer) that largely […]

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Justin Bryan Featured

Justin Bryan is One Tuff Dude

By The EHE Foundation | December 8, 2015 | Comments Off on Justin Bryan is One Tuff Dude

In October of 2015, Justin Bryan endured a 10-day trek up 19,341 feet of elevation as he scaled the peak of Mount Kilimanjaro in Tanzania. Not too shabby for a man who was told 12 years earlier that he would need to have his leg amputated due to EHE. The year was 2003, and Bryan […]

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