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Latest EHE News, Events and Research
The Pledge: Edition 32, Q1 – January-March, 2023
Publication of The Pledge quarterly newsletter is led by the EHE Rare Cancer Charity (UK). EHE patient advocacy groups from around the globe. provide content including research news, patient and fundraising stories, and much more! Click here to view the most recent edition of our online EHE newsletter, The Pledge.
2023 EHE Research Grants – Funding Impactful Projects That Support Our Mission
The EHE Foundation seeks to support and fund the most promising basic, translational, and clinical research that will expand our current understanding of EHE and accelerate the development of treatments, and a cure for EHE. Each year, the Foundation initiates a new Research Grants Cycle, inviting researchers and clinician scientists from around the world to […]
Highlights From ASCO 2023
Our Director of Research, Denise Robinson, attended the American Society of Clinical Oncology (ASCO) 2023 Annual Meeting and the Sarcoma Alliance for Research through Collaboration (SARC) Semi-annual Meeting in Chicago, IL, in early June. Over 30,000 people joined together in person to conquer cancer! ASCO is the world’s leading organization for oncology, bringing together clinicians, […]
The EHE Foundation Welcomes New Executive Director, Tammy Silverthorne
The EHE Foundation is pleased to announce that Tammy Silverthorne has been selected as Executive Director. With significant consideration given to the leadership skills, experience, and non-profit expertise needed to successfully guide the Foundation in its next phase of growth, the Board of Directors has selected Tammy Silverthorne to serve in this important leadership role. […]
The EHE Foundation and NORD® Launch Natural History Study of Epithelioid Hemangioendothelioma (EHE)
This research study is open to participants worldwide to advance understanding and treatments for epithelioid hemangioendothelioma (EHE), an ultra-rare vascular sarcoma. Hobart, Wisconsin. June 13, 2023 — The EHE Foundation and the National Organization for Rare Disorders (NORD®) have launched a global patient registry study to research epithelioid hemangioendothelioma (EHE), an ultra-rare vascular sarcoma for […]
EHE Research Grants – Your Support Makes a Big Impact
Lamar Lab at Albany Medical College Advancing EHE Research The EHE community is fortunate to have Dr. John Lamar, PhD, Associate Professor in the Department of Molecular and Cellular Physiology at Albany Medical College, and his team, working to advance our mission to find effective treatments for EHE. Dr. Lamar’s lab, the ‘Lamar Lab’, has […]
Science Saturday: EHE Research Progress & Momentum
Join the EHE Foundation for a special Science Saturday on Rare Disease Day, February 28, 2026, 11:00 am – 12:30 pm ET. This virtual event is designed for anyone affected by EHE who wants an up-to-date view of the EHE research landscape. This free, interactive presentation will highlight Foundation-led research, global scientific advances, and the […]
Reflecting on 2025 and Looking Ahead With Purpose
For the global EHE community, 2025 brought challenges, resilience, and momentum. Grounded in connection and a shared commitment to progress in EHE, we look back with emotion, appreciation, and gratitude, and in 2026, we look forward with determination and hope.
Translating molecular mechanisms of EHE to improve patient outcomes
Scientists know that most EHE tumors are caused by specific genetic changes called gene fusions. In most people with EHE, two genes, WWTR1 and CAMTA1, are abnormally fused. In a smaller number of cases, a different fusion involving YAP1 and TFE3 is present. In a recent review published in Critical Reviews in Oncology/Hematology, the authors […]