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Leadership

Board of Directors

EHE Foundation’s Board of Directors provides strategic leadership, governance, and stewardship in support of our mission. Guided by a deep commitment to the EHE community and often, personal connection to the disease, the Board helps ensure that our work remains focused, accountable, and positioned to drive meaningful progress.

Team

Our team leads the day-to-day work of advancing the Foundation’s mission. Through research facilitation, community engagement, patient education, communications, and operations, they help turn strategy into action and drive progress for people affected by EHE.

Scientific & Medical Advisory Board

Bringing together leading experts in sarcoma, oncology, pathology, and rare cancer research, the Scientific & Medical Advisory Board (SMAB) helps inform the Foundation’s research strategy and scientific direction. Their expertise strengthens collaboration and supports efforts to improve outcomes for people living with EHE.

Every contribution counts.

Accelerate research. Improve lives.

Help us continue to fund vital studies, expand patient resources, and build a world where EHE is curable.

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