Spread EHE Awareness
For a Better Future for People With EHE
April is EHE Awareness Month
Every April, people affected by epithelioid hemangioendothelioma (EHE) share their stories with the world and spread awareness of EHE, an ultra-rare cancer that many people have never heard of. EHE awareness extends beyond April, and this community builds it every day.
For a disease this rare, awareness brings hope, support, and better tools for people diagnosed. It can shorten the diagnostic journey or help a person newly diagnosed find expert care and a community that understands what they are facing. Awareness keeps EHE visible to the researchers and drug developers whose work will lead to new treatments. Every person who learns about EHE becomes part of a path to better outcomes.
How to Spread EHE Awareness
If You Are Living with EHE
You carry a perspective no one else can offer. When you share what this disease looks like from the inside, you make EHE visible in ways that facts alone cannot.
Tell Your Story
Share your experience of being diagnosed and living with EHE. Your story could help someone newly diagnosed feel less alone.
Share an Awareness Message
What do you wish others understood about EHE? Your answer can change how someone understands this disease.
Use Social Media
Follow us @EHEfoundation and share our content on Facebook, Instagram, LinkedIn, and X to put EHE in front of your network.
If You Are a Family Member, Friend, or Supporter
You don't need to have EHE to make EHE visible. Share stories and facts about EHE on social media and in conversation. Find us @EHEfoundation on Facebook, Instagram, LinkedIn, and X.
Make a gift in honor of someone you care for. Every dollar funds the research that brings new treatment options closer.
How it Started
EHE Awareness Month began when Julie Wahl, EHE Foundation Board Member Emeritus, recognized that EHE needed visibility to drive progress. She set out to share her daughter Laney’s experience and encouraged others to do the same. That spark has grown into a global effort.
Today, people with EHE and their families around the world join together each April to share stories of hope, fear and loss, and community. Julie and Laney are heroes for starting this tradition. Let’s carry it forward until we have a cure!
Every story, every dollar, every voice brings a cure closer.
Find inspiration in all the ways you can help advance EHE research, education, and advocacy.