Learning Hub
Basics
EHE 101
Explore the essentials of EHE–from what it is and how it’s diagnosed to common symptoms, treatment basics, and frequently asked questions. Build a strong foundation for informed care decisions.
Annual Event
EHE 360 Global Conference
World's only global forum dedicated exclusively to EHE, featuring the latest in EHE research and clinical care.
Topic-Based Learning
EHE 360 Connect
Webinars on EHE research, clinical care, and integrative and supportive care.
Care & Support
Navigating EHE
Build an expert care team, prepare for appointments, and get oriented to the practical needs of living with EHE.
ABCs of EHE
Glossary
Plain-language definitions for EHE, sarcoma, and cancer-related terms.
Q adn A on EHE
Frequently Asked Questions
Answers to the questions people ask most about EHE, its treatments, and management.
Expand Your Knowledge
Explore our curated collection of EHE publications and expert-led webinars to stay current with the latest discoveries and clinical insights.
Publications Library
A searchable collection of published literature on EHE, including basic and translational science, case reports, literature reviews, quality-of-life studies, and clinical trial analyses.
Video Library
Access webinars, conference recordings, expert presentations, and video stories of people with EHE.
Experts’ Consensus on EHE
An international group of experts outlines disease biology, pathology, clinical presentation, and general principles of EHE management in the Experts’ Consensus Paper on EHE Management. Written to guide clinicians caring for people with EHE, the paper reflects current evidence and shared clinical experience across global EHE centers.
A patient-friendly version was developed to help people diagnosed with EHE understand the principles that shape care decisions. This foundational resource is a must-read for anyone affected by EHE and supports informed care planning and shared decision-making.
About EHE Foundation
The EHE Foundation is the leading global nonprofit organization dedicated to improving the lives of people affected by epithelioid hemangioendothelioma (EHE), an ultra-rare vascular cancer.
We connect people affected by EHE with the global experts who study and treat this disease, united in a shared mission to unlock answers and discover effective treatments. By funding groundbreaking research and equipping patients with education and resources, we’re building a research-ready community poised for progress.
With no standard treatment for EHE, the needs of this community are urgent. We are here to replace fear with knowledge, isolation with connection, and uncertainty with hope.
Downloadables for Navigating Care
Request a Newly Diagnosed Toolkit
A step-by-step guide and practical resources for people newly diagnosed with EHE.
EHE Care Plan & Toolkit
A ready-to-use toolkit for building your care plan and navigating shared decision-making with your care team.
Experts' Consensus Paper
Available in a physician version and patient versions in English, German, Italian, and Spanish.
Clinical Trials
An introduction to the clinical trial process and how you can find and consider a trial that is right for you.
Navigating Insurance Toolkit
Guidance and tools for navigating insurance with EHE.
Research Participation Downloadables
For People Living With EHE
Find practical guidance, supportive resources, and tools to navigate care, find connection, and self-advocate.