Denise Robinson
Executive Director
Denise was introduced to the EHE community in 2018 after a friend’s short battle with the disease. She brings 20 years of clinical research experience, including Phase I-IV clinical trials across many disease areas, with a particular focus on rare and life-threatening conditions. Her career has been dedicated to working alongside pharmaceutical companies, physicians, and patients to advance important research.
At EHE Foundation, Denise oversees the organization’s sponsored research initiatives and research grants program. She is the Principal Investigator of the EHE Global Patient Registry and serves as a liaison to the global EHE research and clinical community.
Before stepping into her current leadership role, Denise served on the EHE Foundation Board of Directors and volunteered on several working committees. She brings deep research expertise, strategic leadership, and a strong commitment to advancing treatments and a cure for EHE.