About EHE

Epithelioid hemangioendothelioma (EHE) is an ultra-rare cancer, specifically a type of soft-tissue sarcoma, that arises from cells in the lining of blood vessels. This section directs you to clear, medically grounded information about EHE to support knowledge and informed decision-making.

A close look at Epithelioid hemangioendothelioma from a microscope

Basics

EHE 101

Explore the essentials of EHE–from what it is and how it’s diagnosed to common symptoms, treatment basics, and frequently asked questions. Build a strong foundation for informed care decisions.

Care & Monitoring

Treating & Managing EHE

Explore how EHE is managed, including disease monitoring, care planning considerations, and finding expert care.

A set of hands holding an orb with data points and icons floating around the orb.

Educational Resources

Learning Hub

Access publications, expert-led webinars, and reference tools to expand knowledge about EHE to keep pace with advances in EHE care and research.

Experts’ Consensus on EHE

An international group of experts outlines disease biology, pathology, clinical presentation, and general principles of EHE management in the Experts’ Consensus Paper on EHE Management. Written to guide clinicians caring for people with EHE, the paper reflects current evidence and shared clinical experience across global EHE centers.

A patient-friendly version was developed to help people diagnosed with EHE understand the principles that shape care decisions. This foundational resource is a must-read for anyone affected by EHE and supports informed care planning and shared decision-making.

Read the paper

About EHE Foundation

The EHE Foundation is the leading global nonprofit organization dedicated to improving the lives of people affected by epithelioid hemangioendothelioma (EHE), an ultra-rare vascular cancer.

We connect people affected by EHE with the global experts who study and treat this disease, united in a shared mission to unlock answers and discover effective treatments. By funding groundbreaking research and equipping patients with education and resources, we’re building a research-ready community poised for progress.

With no standard treatment for EHE, the needs of this community are urgent. We are here to replace fear with knowledge, isolation with connection, and uncertainty with hope.

Learn More About Us

Expand Your Knowledge