For People With EHE
Newly Diagnosed? Start Here.
Seeking Care
Navigating EHE
Build an expert care team, prepare for appointments, and get oriented to the practical needs of living with EHE.
Accelerating Discovery
Your Role in Research
EHE research requires participation from people living with EHE. Learn how you can take action to drive discovery.
Finding Community
Inspiration & Support
Connect with others living with EHE, read stories from the community, and find encouragement in knowing you are not alone.
Build Knowledge
Explore essential information on EHE, then go deeper with expert-led webinars, published research, and reference tools to expand knowledge about EHE.
Use the Experts' Consensus Paper to understand the principles guiding care decisions, and the publications library to follow the latest research.
Find resources to help you prepare for appointments, build a care team, and download practical tools for every stage of diagnosis and treatment. The glossary and FAQs will help clarify new terms and answer common questions.
Stay Informed
Every month brings something worth knowing – new research findings, upcoming events, ways to get involved, and stories from others living with EHE. Our monthly newsletter will keep you informed.
Driving Progress
The EHE Foundation is paving the path toward better treatments and one day, a cure.
By accelerating research through global collaboration and empowering patients with knowledge and connection, we are creating better outcomes for people living with EHE.
Improving Care
Advancing EHE treatment and management to support better care.
Leading Research
Facilitating global collaboration to advance EHE research.
Building Knowledge
Providing trusted EHE education to support informed decisions.
Supporting Community
Fostering connection and support for people living with EHE.
Continue Learning
Build an expert care team, prepare for appointments, and get oriented to the practical needs of living with EHE.