Carrying Sharon’s Hope Forward
Sharon’s husband, Howard, sums her up in one word: selfless. She wanted nothing more than for her family to be happy and cared for, and she was the glue that held them together. Her smile brightened everyone’s day.
When Sharon’s tumors began to grow and her pain became debilitating, she endured ablations, an off-label drug with terrible side effects, and finally, chemotherapy. But the disease burden was too much, and Sharon passed away on March 2, 2026, surrounded by her loving family.
At the link below, Howard tells her story and why he gives to EHE Foundation every month in her memory.
“An approved treatment for EHE did not come soon enough for Sharon, but I have tremendous hope that something is on the horizon for others living with EHE.” - Howard Brener

More Ways to Give

By Check
Make your check payable to the EHE Foundation, and send it to: EHE Foundation, 1561 Hopi Ct., Hobart, WI 54313.

By EFT
We are happy to accept gifts via electronic funds transfer. Please contact us for our banking information.

Donor Advised Funds
Make an impact with a charitable gift to the EHE Foundation from your DAF.

Planned & Investment Giving
Support our mission through charitable gifts of stocks, annuities, or beneficiary designations. Contact us for more information.

Matching Gifts & Workplace Giving
Support our mission in easy, impactful ways, such as payroll deductions and employer matching gifts.

Corporate Partnership
Partner with us to advance science and education to benefit people affected by ultra-rare cancer.

Be a Catalyst
Make a recurring gift to sustain the work of the EHE Foundation.

Fund EHE Your Way
Rally your community to raise funds for cancer research, educational programming, and advocacy by organizing a unique event in support of the EHE Foundation.
Remember Someone You Love
A tribute page is a place for a legacy to endure, where photos, stories, and the details worth holding onto can live. It gives family and friends somewhere to gather around a person's memory, and a way to turn that memory into research that will change what an EHE diagnosis means.
You can add to it over time. Share it whenever it feels right, on a birthday, an anniversary, or the day you just want people to remember with you.

Additional Giving Details
Donations by Check
Make your check payable to the EHE Foundation.
Send it to the following address:
EHE Foundation 1561 Hopi Ct. Hobart, WI 54313
EIN 47-3238441
News & Blog
Latest from the EHE Foundation
We are Changemakers
We are working to improve lives by transforming EHE from a life-changing diagnosis into a treatable and ultimately curable disease.









