The EHE Foundation

Lamar Lab at Albany Medical College

New Study Uncovers Unexpected Role for AMPK in EHE

By The EHE Foundation / September 22, 2025 / 0 Comments

A project funded by the EHE Foundation, the EHE Rare Cancer Charity (UK), and the EHE Rare Cancer Foundation Australia, and led by Dr. Ryan Kanai in the Lamar Lab, was recently published in Cancers, revealing a surprising new role for AMPK in controlling the growth of EHE cells.  Dr. Kanai set out to find […]

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EHE Advocates Unite to Navigate Complexities of Drug Development

By The EHE Foundation / September 19, 2025 / Comments Off on EHE Advocates Unite to Navigate Complexities of Drug Development

We are thrilled to share a new publication that includes participation of  EHE advocacy organizations: “How to foster new treatment development in ultra-rare tumours? Joint EMA-EORTC multi-stakeholder workshops on ultra-rare sarcomas as a model for rare cancers.”  Leaders of the EHE Rare Cancer Charity (UK), the EHE Foundation, and EHE ITALIA Associazione Non Solo Laura […]

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Lamar Lab at Albany Medical College

Preclinical Evidence Supporting the Therapeutic Potential of Statins in EHE

By The EHE Foundation / September 18, 2025 / Comments Off on Preclinical Evidence Supporting the Therapeutic Potential of Statins in EHE

In 2022, the EHE Foundation funded the Lamar Lab’s project entitled ‘Use of Pre-clinical EHE Models to Identify Druggable Pathways to Treat EHE,’ with the goal of identifying FDA-approved drugs that can be repurposed to treat EHE. By looking for drugs that are already FDA-approved, ideally, positive pre-clinical findings could be more rapidly translated to […]

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Andrei Ivanescu, Denise Robinson, and Hugh Leonard - Global EHE Advocates

EHE Advocates Join Forces to Fund Multi-National Research Expansion

By The EHE Foundation / September 16, 2025 / Comments Off on EHE Advocates Join Forces to Fund Multi-National Research Expansion

As partners in EHE research to find better treatments for people with EHE, the EHE Rare Cancer Charity (UK), the EHE Foundation, and EHE ITALIA Associazione Non Solo Laura ODV are excited to share the expansion of the multi-national collaborative research project “The generation and characterization of patient-derived models of EHE to assess the activity […]

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The Pledge: Edition 41, Q2 - April-June, 2025

The Pledge: Edition 41, Q2 – April-June, 2025

By The EHE Foundation / August 21, 2025 / Comments Off on The Pledge: Edition 41, Q2 – April-June, 2025

Publication of The Pledge quarterly newsletter is led by the EHE Rare Cancer Charity (UK). EHE patient advocacy groups from around the globe provide content including research news, patient and fundraising stories, and much more. Click here to view the most recent edition of the online EHE newsletter, The Pledge.

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EHE Researchers at YAP/TAZ and TEADs Conference in Telluride, CO

Advancing EHE Research at the 9th Annual YAP/TAZ and TEADs Workshop in Telluride, Colorado

By The EHE Foundation / July 17, 2025 / Comments Off on Advancing EHE Research at the 9th Annual YAP/TAZ and TEADs Workshop in Telluride, Colorado

The 9th Annual YAP/TAZ and TEADs: At the Crossroads of Cancer workshop took place June 9-13, 2025, in the stunning mountain town of Telluride, Colorado. Hosted by the Telluride Science and Innovation Center and organized by Drs. Guy Weinberg and John Lamar, this unique gathering brought together top-tier researchers and clinicians from academia and industry […]

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