EHE Foundation

EHE Foundation Welcomes Two Leading Sarcoma Experts to Its Scientific & Medical Advisory Board

By EHE Foundation / February 8, 2026 / Comments Off on EHE Foundation Welcomes Two Leading Sarcoma Experts to Its Scientific & Medical Advisory Board

EHE Foundation is pleased to announce the appointment of two distinguished physician-scientists to its Scientific & Medical Advisory Board: Nam Quoc Bui, MD, and Benjamin A. Nacev, MD, PhD. Their expertise in sarcoma medical oncology and translational research will greatly strengthen the Foundation’s advisory capacity as we work to accelerate progress in understanding and treating […]

Reflecting on 2025 and Looking Ahead With Purpose

By EHE Foundation / January 20, 2026 / Comments Off on Reflecting on 2025 and Looking Ahead With Purpose

For the global EHE community, 2025 brought challenges, resilience, and momentum. Grounded in connection and a shared commitment to progress in EHE, we look back with emotion, appreciation, and gratitude, and in 2026, we look forward with determination and hope.

The EHE Foundation Welcomes Kristianne Oristian, PhD, as Director of Research & Engagement

By EHE Foundation / December 9, 2025 / Comments Off on The EHE Foundation Welcomes Kristianne Oristian, PhD, as Director of Research & Engagement

The EHE Foundation is proud to announce the appointment of Kristianne (“Kristi”) Oristian, PhD, as our new Director of Research & Engagement. In this role, Kristi will work closely with Executive Director Denise Robinson, who previously led both organizational and research strategy, to advance the Foundation’s mission and strengthen our growing impact in the global […]

Advancing EHE Research on the Global Stage: Highlights from CTOS 2025

By EHE Foundation / December 5, 2025 / Comments Off on Advancing EHE Research on the Global Stage: Highlights from CTOS 2025

The EHE Foundation had the privilege of attending the CTOS 2025 Annual Meeting, held November 12-15, in Boca Raton, Florida. The Connective Tissue Oncology Society (CTOS) is a global, professional medical organization of clinician-scientists, translational researchers, and patient advocates united by a single goal: advancing treatment of sarcomas.   For the EHE community, this annual gathering […]

EHE Stabilization with Sirolimus: Results From POEM, a Prospective Multicentric Observational Study

By EHE Foundation / November 6, 2025 / Comments Off on EHE Stabilization with Sirolimus: Results From POEM, a Prospective Multicentric Observational Study

Drs. Claudia Giani, Anna Maria Frezza, Silvia Stacchiotti, and colleagues from the Fondazione IRCCS Istituto Nazionale dei Tumori, Milan, Italy, and Royal Marsden Hospital, London, UK, presented results from POEM: a prospective observational study on Epithelioid Haemangioendothelioma at ESMO Congress 2025. The data presented included 57 consecutive molecularly confirmed EHE patients who entered the study, […]

Hanna Lab at Purdue University: ‘When cells in the body stop following the rules, cancer can take hold.’

By EHE Foundation / October 14, 2025 / Comments Off on Hanna Lab at Purdue University: ‘When cells in the body stop following the rules, cancer can take hold.’

You met Jason Hanna, PhD, at the 2025 EHE Global Patient Conference, where he highlighted work his lab is undertaking in EHE. We are thrilled to share a recent publication in Molecular Oncology from the Hanna Lab at Purdue University, highlighting their findings from a study focused on the YAP1-TFE3 subtype of EHE.  The YAP1-TFE3 […]