EHE Foundation
Publication of The Pledge quarterly newsletter is led by the EHE Rare Cancer Charity (UK). EHE patient advocacy groups from around the globe provide content, including research news, patient and fundraising stories, and much more. Click here to view the most recent edition of the online EHE newsletter, The Pledge.
Painting Angels: Christine Jaksy’s Art as Response and Resilience Christine Jaksy’s life has been marked by extraordinary resilience. A former athlete, she has endured a series of disabling and life-threatening conditions—lupus, paralysis of her right arm, and partial paralysis of her other limbs. Then, in December 2023, she received another diagnosis: epithelioid hemangioendothelioma (EHE), a […]
One in a Million: Robbie Garrovillas’ Journey of Diagnosis, Treatment, and Faith When Robbie Garrovillas received his EHE diagnosis in 2025 and endured nine grueling cycles of chemotherapy, he faced not just a medical crisis, but an existential one. How do you make sense of a rare cancer that refuses to fit into neat categories? […]
For a cancer as rare as EHE, connection is something we intentionally create. On Saturday, April 11, 2026, EHE Foundation and Dana-Farber Cancer Institute hosted an inaugural EHE Education Day, bringing together patients, loved ones, clinicians, researchers, and advocates for a day of learning, discussion, and in-person connection. With more than 25 people in attendance, […]
Lila’s Story: Finding Strength in the Unexpected Lila’s EHE story began in a way no one could have planned. Her aunt, an ultrasound technician, was casually scanning her one day when she noticed something unusual on Lila’s liver. What seemed like an offhand moment quickly became something much more serious. “She instantly found 1-2 spots […]
Farzaad’s Story: Facing EHE with Faith, Strength, and Positivity For Farzaad, the first signs that something was wrong were easy to notice, but impossible to explain. Around May 2025, he began experiencing swelling in his face that did not feel normal. He also found himself becoming short of breath more easily. Over time, other changes […]