EHE Foundation
One in a Million: Robbie Garrovillas’ Journey of Diagnosis, Treatment, and Faith When Robbie Garrovillas received his EHE diagnosis in 2025 and endured nine grueling cycles of chemotherapy, he faced not just a medical crisis, but an existential one. How do you make sense of a rare cancer that refuses to fit into neat categories? […]
For a cancer as rare as EHE, connection is something we intentionally create. On Saturday, April 11, 2026, EHE Foundation and Dana-Farber Cancer Institute hosted an inaugural EHE Education Day, bringing together patients, loved ones, clinicians, researchers, and advocates for a day of learning, discussion, and in-person connection. With more than 25 people in attendance, […]
Lila’s Story: Finding Strength in the Unexpected Lila’s EHE story began in a way no one could have planned. Her aunt, an ultrasound technician, was casually scanning her one day when she noticed something unusual on Lila’s liver. What seemed like an offhand moment quickly became something much more serious. “She instantly found 1-2 spots […]
Farzaad’s Story: Facing EHE with Faith, Strength, and Positivity For Farzaad, the first signs that something was wrong were easy to notice, but impossible to explain. Around May 2025, he began experiencing swelling in his face that did not feel normal. He also found himself becoming short of breath more easily. Over time, other changes […]
Anke’s Story: Building Knowledge and Choosing to Just Live For Anke, the road to an EHE diagnosis began with something deceptively ordinary: a stomach ache. Her doctor, being extra cautious, ordered an ultrasound. The scan showed shadows on her liver, and what followed were eight long weeks of uncertainty, testing, and waiting. When the pathology […]
Vanessa’s Story: Finding Answers After Years of Pain Vanessa had been living with abdominal pain and cramping since she was about 13 years old. Again and again, it was dismissed as “just part of being a woman.” But over time, the pain became harder to ignore and eventually unbearable. “I constantly felt like I was […]