EHE Foundation

Anke’s Story: Building Knowledge and Choosing to Just Live For Anke, the road to an EHE diagnosis began with something deceptively ordinary: a stomach ache. Her doctor, being extra cautious, ordered an ultrasound. The scan showed shadows on her liver, and what followed were eight long weeks of uncertainty, testing, and waiting. When the pathology […]

Vanessa’s Story: Finding Answers After Years of Pain Vanessa had been living with abdominal pain and cramping since she was about 13 years old. Again and again, it was dismissed as “just part of being a woman.” But over time, the pain became harder to ignore and eventually unbearable. “I constantly felt like I was […]

BreAnn’s Story: “Keep Fighting. Find Your Path, and Just Live.” BreAnn’s journey with epithelioid hemangioendothelioma (EHE) began with a moment that seemed almost ordinary at first — lifting her 1-year-old daughter out of her crib. “It all started with a broken back after lifting my then 1-year-old out of her crib,” BreAnn said. “I felt […]

Ashley’s Story: “Today Matters.” When Ashley discovered a mass in her own liver, her life changed in an instant. As a diagnostic medical sonographer, she was used to helping others navigate medical uncertainty. She never expected to face it herself. “I am a diagnostic medical sonographer, and I found a mass in my own liver,” […]