The EHE Foundation

2023 EHE Foundation Research Grant Awards

2023 EHE Foundation Research Grant Awards Announcement

By The EHE Foundation / December 12, 2023 / Comments Off on 2023 EHE Foundation Research Grant Awards Announcement

The EHE Foundation awards research grants to advance our mission to find treatments and a cure for EHE. With the guidance of our Research Committee, Advisory Board, and expert reviewers, we are pleased to announce the research grants awarded in 2023:   Ajaybabu Pobbati, PhD, Cleveland Clinic Lerner Research Institute Harnessing FDA-approved drugs to gain mechanistic […]

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The Pledge

The Pledge: Edition 34, Q3 – July-September, 2023

By The EHE Foundation / December 11, 2023 / Comments Off on The Pledge: Edition 34, Q3 – July-September, 2023

Publication of The Pledge quarterly newsletter is led by the EHE Rare Cancer Charity (UK). EHE patient advocacy groups from around the globe. provide content including research news, patient and fundraising stories, and much more! Click here to view the most recent edition of our online EHE newsletter, The Pledge.

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Brianna Carney

Brianna Carney

By The EHE Foundation / November 22, 2023 / Comments Off on Brianna Carney

Brianna Carney was only 23 when she passed on December 26, 2022. She was full of life and lived it to the fullest. She was passionate about those she loved, her dogs, rescuing other dogs, helping people, and being the best version of herself through hard work. She was a first-generation graduate of Nova Southeastern […]

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John McFadden joins The EHE Foundation Board of Directors.

Welcome New Board Member John McFadden, Ph.D., CRNA, APRN

By The EHE Foundation / November 17, 2023 / Comments Off on Welcome New Board Member John McFadden, Ph.D., CRNA, APRN

The EHE Foundation was founded by patients, for patients. Continuing that tradition, we aredelighted to announce that EHE patient John McFadden, Ph.D., CRNA, APRN, has joined ourBoard of Directors. With more than 35 years of experience in health care, Dr. McFadden has held positions as anurse executive, hospital and university program accreditation surveyor, faculty member, […]

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Together we give on Giving Tuesday

Giving Tuesday is November 28th

By The EHE Foundation / November 14, 2023 / Comments Off on Giving Tuesday is November 28th

During the busy holiday season, The EHE Foundation asks that you join us in celebrating Giving Tuesday, not just on Tuesday, November 28th, but throughout the month of November. All proceeds will support our vision: a world where EHE is easily diagnosed and treatable. Retailers are bombarding us with Black Friday and Cyber Monday advertisements. Let […]

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Nick Scalora and Munir Tanas

Spotlight on Young Investigator Nicholas Scalora, Advancing the Science Behind EHE

By The EHE Foundation / November 14, 2023 / Comments Off on Spotlight on Young Investigator Nicholas Scalora, Advancing the Science Behind EHE

The EHE Foundation is proud to have awarded the 2023 Fellowship Travel Grant to Nicholas (Nick) Scalora, a 5th year graduate research assistant in the Tanas Laboratory, at the University of Iowa, where the team studies the role of the Hippo pathway in sarcomas. Dr. Munir Tanas, expert pathologist and researcher, was first author of […]

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