The EHE Foundation

Supporters continue to celebrate their birthdays (and other special occasions) by creating a fundraiser on Facebook to support The EHE Foundation. Facebook allows supporters to easily create the event, share their story, invite friends, and track their progress toward their goal.  This convenient online tool has allowed many of our supporters to increase awareness while raising funds for our cause on a platform that is convenient and familiar to them.

Thanks to Diana Donohoo, Scott Herbert, Terry Neugeboren, Stephanie Badten, Cortney Walters, Robin Spielberger, Malcolm Barrah, David Kauffman, Tracey Kubica, Rachel Huver, Susie Harris Wood, Ed and Cindy Rivers, Ingrid Coddington, Connie Jones Skipper, Olivia Wahl, Katie Loehlein, Michaela Burrell, Jessica Kostelac, Patricia Ruth hoover, Delaney Wahl, Sarah Yaneza, Karen Workenaour, Heidi Tolton Chatterson, Mélisande Lieber Heckman, Jeanette Regelin Neese, Alison Hughes-Waters, Natasha Kilfoil, Missy Stewart Pluta, Stacey Stefan, Michael Beaupre, Julie Wahl, Ann Madigan Campbell, Jay Leonard Tyler, and Aaron Mathew Crumm for helping us raise over $28,000 through individual Facebook Fundraisers

Brian Frank passed away from EHE on September 2, 2014 at the age of 28. Brian had only been sick for about 6 months and was not properly diagnosed until he passed.  His family and friends, led by his mother, Darlene Frank, and his sister, Angela Osborn, organize an annual event in Brian’s memory, which consists of a golf tournament, poker tournament, raffle, and silent auction. They rally their entire community in Enumclaw, Washington to support The EHE Foundation’s mission in memory of Brian every year. This amazing group raised over $25,000 in the past three years to support The EHE Foundation’s mission.

Stephanie Herald and Courtney Walters, along with other family and friends of Justin Herald organized a memorial softball tournament in his memory in Hailey, Idaho on June 3-4 2017.   They had a spectacular event with outstanding community support, great weather, and a group of enthused players.  Justin was a full-time fireman and paramedic, a certified CrossFit trainer, and an avid physical fitness advocate who passed away in January 2017 from EHE at the age of 36. His wife, Stephanie, and sister, Courtney, continue to rally support for The EHE Foundation in many different ways into 2018.

Jimmy Crook started the 100 mile challenge many years ago, while he was deployed to Afghanistan as a way to pass time and get people motivated through the tough holiday month of December. It has morphed into a nationwide group on Facebook (#Run4) that raises money for charity, encourages others on their fitness journey, and gets people moving.

The group completes four challenges a year to raise money for different causes. The EHE Foundation was chosen in 2017 and Delaney Wahl’s story was highlighted throughout the challenge.  This event not only raised money, but introduced many people to EHE and the importance of our mission.  Many of the participants continue to follow Delaney’s story and are dedicated to our mission.

The spirit of group is well demonstrated by David Petrisko, who has no direct link to EHE, but was so moved by Delaney’s story, he got the “Just Live” tattoo, complete with fishing hook to demonstrate his love of fishing! Thanks to everybody involved with the group for their wonderful support, and for raising over $11,000 for EHE research.

 

Earlier this month, Angela Osborn, along with numerous family and friends, gathered for a night of poker in Washington in order to honor her late brother Brian Frank. Along with the poker tournament, a silent auction was held, T-shirts and sweatshirts featuring Brian’s initials and birthdate were sold, and at the end of the evening, a staggering $11,000 had been raised to fight EHE!

“People absolutely love to come out and support a cause that they KNOW their money is going directly to research,” Osborn said. “We lost our Brian, but we all hope to save someone else from losing a loved one from EHE.”

Brian passed in September of 2014 at the young age of 28, but Angela’s family continues his fight. This was the second poker tournament in Brian’s honor. In 2015, the event raised $7,000!

From the entire EHE community, we thank the Osborn and Frank families for their ongoing support of EHE research!