TISSUE DONATION IS CRITICAL TO FIND TREATMENTS! Click here to learn more.
We envision a world where Epithelioid Hemangioendothelioma (EHE) is easily diagnosed and treatable. Join our dedicated community by subscribing to our emails.
EMPOWER YOURSELF WITH KNOWLEDGE
Upcoming Foundation Events
Quick Links
Patients
Community
Latest EHE News, Events and Research
The EHE Foundation Attends CTOS 2022
With sincere gratitude to each patient who has contributed to the EHE Biobank, patient-driven research was on the global stage! Denise Robinson, The EHE Foundation Director of Research and Patty Cogswell, EHE Biobank Coordinator, presented a poster on the EHE Biobank on behalf of The EHE Foundation last month at the CTOS 2022 Annual Meeting […]
The Pledge: Edition 30, Q3 – July-September, 2022
Together, the US, UK, and Australia EHE foundations team up to strengthen the force against EHE. This group provides a quarterly update, which is led by the UK and includes research news, patient and fundraising stories, and much more! Click here to view the most recent edition of our online EHE newsletter, The Pledge.
2022 EHE Research Grant Awards Announced
The EHE Foundation has completed its 2022 EHE Research Grant cycle and is pleased to share that it has awarded the largest grants funding in its history – totaling $291,600 grants to three outstanding applicants. This amazing sum is complemented by additional private funds totaling $250,000, bringing this year’s total research investment to $541,600 USD. […]
An Update from Memorial Sloan-Kettering Cancer Center – Investigating the Early Molecular Mechanisms of WWTR1::CAMTA1 and YAP1::TFE3 Gene Fusions in Driving the Pathogenesis of EHE
The EHE community, which includes cancer patients and their families from around the world, benefits from the world-class innovative research that takes place at Memorial Sloan-Kettering Cancer Center (MSKCC) in New York City (US). In 2019, MSKCC received a $1 million private donation to establish an International Center of Expertise in EHE and since that […]
Cancer Identity Session #3: Integrating Cancer Identity Into the Self
Mark your calendars for our November Community Connection with Drs. Vesel and Baechler! Join us for the third session on “Who am I now? Integrating the cancer identity into the self.” All are welcome to join, even if you missed previous sessions! This session will NOT be recorded. If you haven’t yet – please complete […]
Immunotherapy: how it works and its role in the treatment of EHE
Jane Gutkovich will go over some basic principles of various types of immunotherapy, available predictive markers to patients response, and current knowledge of immunotherapy efficacy in EHE. Session Recording
Farzaad D.
Farzaad’s Story: Facing EHE with Faith, Strength, and Positivity For Farzaad, the first signs that something was wrong were easy to notice, but impossible to explain. Around May 2025, he began experiencing swelling in his face that did not feel normal. He also found himself becoming short of breath more easily. Over time, other changes […]
Advocacy in Action: ESMO Sarcoma and Rare Cancers Congress & EHE Research Meeting
In March, EHE Foundation was represented at two important meetings in Europe focused on sarcoma, rare cancers, and EHE research. These gatherings were invaluable opportunities to connect with clinicians, researchers, and fellow advocates working to improve care, deepen understanding, and advance progress for people affected by EHE. Executive Director Denise Robinson attended on behalf of […]
Across Borders and Histologies: Rethinking Endpoints for Vascular Sarcoma Trials
Following the publication of results from a phase 2 study of eribulin in two vascular sarcomas, angiosarcoma and EHE, Dr. Tom Chen of National Taiwan University College of Medicine shared commentary in Clinical Cancer Research. He praised the investigators for their collaborative study while also pointing to important considerations for future research. Although angiosarcoma and […]