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Events
You’re invited to an EHE Meetup! Most of us have never met another EHE patient in person—let’s change that! Join us on Sunday, April 13th, for an in-person EHE Meetup at the Bethesdan Hotel in Bethesda, MD (Washington, D.C. area) from 2:00 – 4:00 PM ET, immediately following the Sarcoma Patient Advocacy Global Network (SPAGN) […]
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Dr. Scott M. Schuetze, University of Michigan, Rogel Cancer Center, will provide an overview of the rationale for treatment of EHE with trametinib, an oral inhibitor of the MEK kinase; the trial design of 10015/SARC033; and the results of the primary and secondary study endpoints. The presentation will also include an update on exploratory investigation […]
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Join us for EHE 360 Connect on Wednesday, January 22, 2025, 12:00-1:00 pm ET. This webinar features Dr. Silvia Stacchiotti, Medical Oncologist at the Fondazione IRCCS Istituto Nazionale dei Tumori, Milan, Italy, presenting “Sirolimus for the Treatment of EHE.” In this session, Dr. Stacchiotti will highlight data currently available on the use of Sirolimus to […]
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As a caregiver, it can be hard to not think about the future and what it may or may not hold. In doing so, it is common for caregivers to experience anticipatory grief, in which we mourn the loss of our loved one while they are still here as well as grieve the future that […]
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