Events

Science Saturday: Patient-Powered Research

Community Connections – Science Saturday: Patient-Powered Research

By The EHE Foundation / January 31, 2024 / Comments Off on Community Connections – Science Saturday: Patient-Powered Research

Join The EHE Foundation’s Director of Research, Denise Robinson, as she explains the power of patients to advance research into EHE. What is patient-powered research, why does it matter, and how can you contribute? Join us to learn what’s happening in EHE research and the pivotal role you play in advancing our understanding of this […]

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EHE Community Connections: Championing Our Cause - How patients drive fundraising support

Community Connections: Championing Our Cause: How Patients Support Fundraising

By The EHE Foundation / August 29, 2023 / Comments Off on Community Connections: Championing Our Cause: How Patients Support Fundraising

Join us for EHE Community Connections as we discuss, “Championing Our Cause: How Patients Drive Funding Support.” Collaborate with other patients and caregivers to explore the most creative and effective fundraising ideas. Together, let’s talk about how to better engage our own community of donors, create awareness and raise money for this one-in-a-million cancer! This […]

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TEAD Talk with David Casimir, PhD, JD

Community Connections – TEAD Talk – The Pursuit of a Treatment and Cure for EHE

By Maggie Cameron / May 17, 2023 / Comments Off on Community Connections – TEAD Talk – The Pursuit of a Treatment and Cure for EHE

Join David Casimir, PhD, JD as he provides a patient-level presentation addressing the questions: What is TEAD? How does it relate to EHE? How is it being used to develop EHE treatments? How do these treatments move from the laboratory, through clinical trials, to patient care? This session will be recorded.

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Register by April 30 for the 2023 EHE Fun Run & Walk

2023 EHE Fun Run & Walk Registration Deadline

By Maggie Cameron / April 15, 2023 / Comments Off on 2023 EHE Fun Run & Walk Registration Deadline

April 30th is the last day to register for the 2023 EHE Fun Run Register today for the 2023 EHE Fun Run and Walk. It is for all ages and abilities. It is also virtual, which means it can be done anywhere you are. You can walk around the block, do a 5K, or proudly […]

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EHE 360 - 2023 Global Patient Conference

EHE 360 Global Patient Conference

By Maggie Cameron / January 6, 2023 / Comments Off on EHE 360 Global Patient Conference

Join us for EHE 360, a virtual patient conference featuring an international group of clinicians and researchers bringing the latest information about EHE to patients and families. And, back by popular demand, our Ask the Expert Panel will give you an opportunity to present questions about EHE to experts, and get their insights LIVE! You will leave […]

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Good Vibes for McKenna

Good Vibes for McKenna

By Maggie Cameron / January 4, 2023 / Comments Off on Good Vibes for McKenna

Attention Florida! Do you LOVE live music? The “2nd Annual Good Vibes for McKenna, A Celebration Benefiting Cancer Research” will be held on Sun, Jan 22nd from 3-9PM (ET) in Fort Myers. The concert will benefit The EHE Foundation and will feature: 🎸Cody Canada & The Departed 🎸Ian Moore 🎸Them Dirty Roses 🎸Ross Mead Get […]

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