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Patient Services
What is EHE?
EHE Management
Newly Diagnosed
Provider Directory
EHE in Children
Patient Registry
Tissue Donation
EHE Support Groups
Join our Community
EHE 360 Global Conference
Additional Resources
Contact Patient Services
Research
Research Projects & Initiatives
EHE Biobank
Patient Registry
Clinical Trials
Research Grants Program
EHE Library
Get Involved
Donate Now!
EHE 360 Global Conference
EHE Fun Run & Walk
EHE Awareness Month
EHE 360 Connect
Community Connections
Fundraising & Events
Fundraising Tools
Circle of Friends
About Us
Our Impact
Our Story & Mission
Board of Directors
Advisory Board
Meet Our Team
Career Opportunities
Foundation Partners
Financial Information
Blog & News
Newsletter Archive
Media & Press
Stories of EHE
Just Live
Contact
DONATE NOW
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EHE Support Group
By
Maggie Cameron
/
March 16, 2026
/
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