The EHE Foundation

The Pledge Q2 2021

The Pledge: Edition 25, Q2 – April-June, 2021

By The EHE Foundation / August 16, 2021 / Comments Off on The Pledge: Edition 25, Q2 – April-June, 2021

Together, the US, UK, and Australia EHE foundations team up to strengthen the force against EHE. This group provides a quarterly update, which is led by the UK and includes research news, patient and fundraising stories, and much more! Click here to view the most recent edition of our online EHE newsletter, The Pledge.

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The Pledge: Edition 24, Q1 - Jan-Mar 2021

The Pledge: Edition 24, Q1 – Jan-Mar, 2021

By The EHE Foundation / May 24, 2021 / Comments Off on The Pledge: Edition 24, Q1 – Jan-Mar, 2021

Together, the US, UK, and Australia EHE foundations team up to strengthen the force against EHE. This group provides a quarterly update, which is led by the UK and includes research news, patient and fundraising stories, and much more! Click here to view the most recent edition of our online EHE newsletter, The Pledge.

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Patty Cogswell

The Importance of Biobanking

By The EHE Foundation / May 17, 2021 / Comments Off on The Importance of Biobanking

Biobanking is a brand-new endeavor for us at The EHE Foundation. Researchers retain frozen and stored tissue and biological samples from surgeries, which usually remains within the institution where the procedure takes place. Today, biobanking is a game-changer for rare disease and patient-led organizations like ours. Biobanks accelerate research by safe-guarding high-quality, donated tissue samples […]

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DNA

Researchers Engineer Much-Needed Mouse Model of a Rare Vascular Sarcoma

By The EHE Foundation / April 20, 2021 / Comments Off on Researchers Engineer Much-Needed Mouse Model of a Rare Vascular Sarcoma

Dr. Rubin used a novel approach to target the gene fusion that causes epithelioid hemgioendothelioma, engineering a novel, first-of-its-kind mouse model of the disease, which will help advance studies to identify new treatments. Click here to read the full article. Sharing exciting news highlighting Dr. Brian Rubin’s research at the Lerner Research Institute at Cleveland […]

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Leah Heinrich

Leah Heinrich Participates on Scientific Peer Review Panel

By The EHE Foundation / March 2, 2021 / Comments Off on Leah Heinrich Participates on Scientific Peer Review Panel

For Immediate Press Release:  SCIENTIFIC PEER REVIEW OF CONGRESSIONALLY DIRECTED MEDICAL RESEARCH PROGRAMS’ RARE CANCERS RESEARCH PROGRAM FOR THE DEPARTMENT OF DEFENSE The Congressionally Directed Medical Research Programs’ (CDMRP), Rare Cancers Research Program (RCRP) consumer advocate Leah Heinrich recently participated in the evaluation of research applications submitted to the RCRP. Leahwas nominated for participation in […]

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The Pledge Q4 2020

The Pledge: Edition 23, Q4 – Oct-Dec, 2020

By The EHE Foundation / February 17, 2021 / Comments Off on The Pledge: Edition 23, Q4 – Oct-Dec, 2020

Together, the US, UK, and Australia EHE foundations team up to strengthen the force against EHE. This group provides a quarterly update, which is led by the UK and includes research news, patient and fundraising stories, and much more! Click here to view the most recent edition of our online EHE newsletter, The Pledge.

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