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I am Missy and I lost my son, Harrison, to EHE. Harrison grew up in Portage, Michigan. He was a good student and young man of faith, who enjoyed being around friends and family. He participated in cross country and track in high school and continued his love of running until his cancer diagnosis. His […]
Read MoreI’m Amanda Holland and I live in Anchorage, Alaska. My husband Logan and I have been married since 2011. When we were married I was blessed to become a mom to his son, Logan M. (18 years old), and we have two beautiful little girls: Madilyn (5) and Hope (6 months). I’m also a dog […]
Read MoreI am Michael Proctor of Fayetteville, NC. I am a former Army Medic that was diagnosed with EHE while serving on active duty in Afghanistan. I have an 8 year old daughter, who is the light of my life. I also enjoy fishing.In early 2010, I was deployed to Afghanistan with Chosen Company of 2nd […]
Read MorePlease join us for our annual “EHE Research Update” teleconference on Saturday, November 2, 2019 from 4:00 pm to 5:30 pm Eastern Standard Time (US). Jane Gutkovich, The EHE Foundation’s Director of Research, will be going over these main topics: What is EHE? Or rather EHEs? Why we all are so different? What have we […]
Read MoreWhat is ISKS? ISKS is . afree to participate global genetic, biological, epidemiological, clinical resource developed to understand the genetic basis of sarcoma in a population. ISKS has created a world first, one of a kind, database that is accessed by doctors, researchers and scientists across the globe. ISKS was developed by Australian EHE Medical […]
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