TISSUE DONATION IS CRITICAL TO FIND TREATMENTS! Click here to learn more.
The EHE Foundation
Biobanking is a brand-new endeavor for us at The EHE Foundation. Researchers retain frozen and stored tissue and biological samples from surgeries, which usually remains within the institution where the procedure takes place. Today, biobanking is a game-changer for rare disease and patient-led organizations like ours. Biobanks accelerate research by safe-guarding high-quality, donated tissue samples […]
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Dr. Rubin used a novel approach to target the gene fusion that causes epithelioid hemgioendothelioma, engineering a novel, first-of-its-kind mouse model of the disease, which will help advance studies to identify new treatments. Click here to read the full article. Sharing exciting news highlighting Dr. Brian Rubin’s research at the Lerner Research Institute at Cleveland […]
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For Immediate Press Release: SCIENTIFIC PEER REVIEW OF CONGRESSIONALLY DIRECTED MEDICAL RESEARCH PROGRAMS’ RARE CANCERS RESEARCH PROGRAM FOR THE DEPARTMENT OF DEFENSE The Congressionally Directed Medical Research Programs’ (CDMRP), Rare Cancers Research Program (RCRP) consumer advocate Leah Heinrich recently participated in the evaluation of research applications submitted to the RCRP. Leahwas nominated for participation in […]
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Together, the US, UK, and Australia EHE foundations team up to strengthen the force against EHE. This group provides a quarterly update, which is led by the UK and includes research news, patient and fundraising stories, and much more! Click here to view the most recent edition of our online EHE newsletter, The Pledge.
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Rosemary or “Rose” was a compassionate, loving, caring person by nature. She was a nurse for 42 years, and retired in June, 2019. She began her career as a float nurse in the hospital, opened and managed an urgent care, amongst many other departments. She concluded her career as a Cardiac Rehab Nurse. Nursing and […]
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I am Amanda Roach from Gastonia, NC. I’ve been married to Philip for 12 years and my two children are Henry (age 7) and Lucy (age 5). I love spending time with my family, which also includes our two fur babies Gemma (a bulldog) and Dino (a husky/shepherd) mix. I’m a high school science teacher […]
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