Ava’s Story

AvaAva is an eight year old girl from Langhorne, PA, where Sesame Place is located. We are about 25 miles from Center City Philadelphia. Ava loves swimming and going to Sesame Place, since it is a water park. Ava loves drawing and takes an Art class on Saturday mornings. She also takes dance class (Hip-Hop) and loves to sing.

Ava loves music. She loves Taylor Swift and One Direction. Her first concert was the Beach Boys when she was five years old. She has also seen One Republic in concert.

Ava is just finishing Second grade at Herbert Hoover Elementary. Ava likes school. She is outgoing and has many friends. Ava has an older brother, Nicholas, who is ten. They are very close. Ava also has eleven cousins and is very close with all of them too.

Ava was diagnosed with EHE February 2014. She has tumors in her liver and lungs and is currently stable and treated with Sirolimus with quarterly monitoring.

We are looking forward to a great summer, beginning with a trip to Hawaii through the Make-A-Wish foundation. We pray that we beat this disease and Just Live!

Posted in