Events

Register by April 30 for the 2023 EHE Fun Run & Walk

2023 EHE Fun Run & Walk Registration Deadline

By Maggie Cameron / April 15, 2023 / Comments Off on 2023 EHE Fun Run & Walk Registration Deadline

April 30th is the last day to register for the 2023 EHE Fun Run Register today for the 2023 EHE Fun Run and Walk. It is for all ages and abilities. It is also virtual, which means it can be done anywhere you are. You can walk around the block, do a 5K, or proudly […]

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EHE 360 - 2023 Global Patient Conference

EHE 360 Global Patient Conference

By Maggie Cameron / January 6, 2023 / Comments Off on EHE 360 Global Patient Conference

Join us for EHE 360, a virtual patient conference featuring an international group of clinicians and researchers bringing the latest information about EHE to patients and families. And, back by popular demand, our Ask the Expert Panel will give you an opportunity to present questions about EHE to experts, and get their insights LIVE! You will leave […]

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Good Vibes for McKenna

Good Vibes for McKenna

By Maggie Cameron / January 4, 2023 / Comments Off on Good Vibes for McKenna

Attention Florida! Do you LOVE live music? The “2nd Annual Good Vibes for McKenna, A Celebration Benefiting Cancer Research” will be held on Sun, Jan 22nd from 3-9PM (ET) in Fort Myers. The concert will benefit The EHE Foundation and will feature: 🎸Cody Canada & The Departed 🎸Ian Moore 🎸Them Dirty Roses 🎸Ross Mead Get […]

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Science Saturday – Highlights and Progress in EHE Research with Hugh Leonard and Denise Robinson

Community Connections – Science Saturday – Highlights and Progress in EHE Research

By Maggie Cameron / December 6, 2022 / Comments Off on Community Connections – Science Saturday – Highlights and Progress in EHE Research

Join Hugh Leonard (EHE Rare Cancer Charity, UK) and Denise Robinson (The EHE Foundation, US) as they highlight EHE advancements and ongoing research around the world. As an ultra-rare sarcoma (cancer) community, research and awareness relies strongly on patients and advocates to keep our mission moving forward until there are better treatments and eventually, a […]

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Dr. Tamara Vesel & Dr. Maeve Baechler

NEW DATE! Community Connections with Drs. Vesel and Baechler

By Maggie Cameron / November 30, 2022 / Comments Off on NEW DATE! Community Connections with Drs. Vesel and Baechler

We are pleased to present the fourth session with Dr. Tamara Vesel, Chief of Division of Palliative Care, Clinical Associate Professor of Medicine and Pediatrics, Tufts University School of Medicine and Dr. Maeve Baechler, LIFE Cancer Coaching. Continuing the discussion, “Who am I now? Integrating the cancer identity into the self,” Drs. Vesel & Baechler […]

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EHE Chat

EHE Chat

By Maggie Cameron / October 20, 2022 / Comments Off on EHE Chat

You are all invited to our next very informal Zoom meeting/chat Saturday, November 19th at 11am EST. This is just an opportunity to get together with members of our EHE family and talk about whatever is on our minds. Sometimes it just helps to see the faces and hear the voices of those who understand […]

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