Events

Registration Opens for the 2024 EHE 360 Global Patient Conference

By Maggie Cameron / January 31, 2024 / Comments Off on Registration Opens for the 2024 EHE 360 Global Patient Conference

Join us for the 2024 EHE 360 Global Patient Conference, a virtual event featuring an international group of clinicians, researchers, and EHE advocacy groups bringing the latest information about EHE to patients and caregivers. Don’t miss this opportunity to come together with other EHE patients, families, caregivers, doctors, researchers, and advocates to learn, collaborate, and advance […]

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2024 EHE Fun Run & Walk Registration is Open

Registration is OPEN for the 2024 EHE Fun Run & Walk

By Maggie Cameron / January 31, 2024 / Comments Off on Registration is OPEN for the 2024 EHE Fun Run & Walk

More information coming soon!

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EHE Awareness Month

By Maggie Cameron / January 31, 2024 / Comments Off on EHE Awareness Month
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Science Saturday: Patient-Powered Research

Community Connections – Science Saturday: Patient-Powered Research

By The EHE Foundation / January 31, 2024 / Comments Off on Community Connections – Science Saturday: Patient-Powered Research

Join The EHE Foundation’s Director of Research, Denise Robinson, as she explains the power of patients to advance research into EHE. What is patient-powered research, why does it matter, and how can you contribute? Join us to learn what’s happening in EHE research and the pivotal role you play in advancing our understanding of this […]

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EHE Community Connections: Championing Our Cause - How patients drive fundraising support

Community Connections: Championing Our Cause: How Patients Support Fundraising

By The EHE Foundation / August 29, 2023 / Comments Off on Community Connections: Championing Our Cause: How Patients Support Fundraising

Join us for EHE Community Connections as we discuss, “Championing Our Cause: How Patients Drive Funding Support.” Collaborate with other patients and caregivers to explore the most creative and effective fundraising ideas. Together, let’s talk about how to better engage our own community of donors, create awareness and raise money for this one-in-a-million cancer! This […]

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TEAD Talk with David Casimir, PhD, JD

Community Connections – TEAD Talk – The Pursuit of a Treatment and Cure for EHE

By Maggie Cameron / May 17, 2023 / Comments Off on Community Connections – TEAD Talk – The Pursuit of a Treatment and Cure for EHE

Join David Casimir, PhD, JD as he provides a patient-level presentation addressing the questions: What is TEAD? How does it relate to EHE? How is it being used to develop EHE treatments? How do these treatments move from the laboratory, through clinical trials, to patient care? This session will be recorded.

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