Events

2024 EHE Fun Run & Walk

2024 EHE Fun Run & Walk EARLY Registration Ends

By Maggie Cameron / March 11, 2024 / Comments Off on 2024 EHE Fun Run & Walk EARLY Registration Ends
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2024 EHE 360 Global Patient Conference

By Maggie Cameron / January 31, 2024 / Comments Off on 2024 EHE 360 Global Patient Conference

Join us for the 2024 EHE 360 Global Patient Conference, a virtual event featuring an international group of clinicians, researchers, and EHE advocacy groups bringing the latest information about EHE to patients and caregivers. Don’t miss this opportunity to come together with other EHE patients, families, caregivers, doctors, researchers, and advocates to learn, collaborate, and advance […]

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Registration Opens for the 2024 EHE 360 Global Patient Conference

By Maggie Cameron / January 31, 2024 / Comments Off on Registration Opens for the 2024 EHE 360 Global Patient Conference

Join us for the 2024 EHE 360 Global Patient Conference, a virtual event featuring an international group of clinicians, researchers, and EHE advocacy groups bringing the latest information about EHE to patients and caregivers. Don’t miss this opportunity to come together with other EHE patients, families, caregivers, doctors, researchers, and advocates to learn, collaborate, and advance […]

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2024 EHE Fun Run & Walk Registration is Open

Registration is OPEN for the 2024 EHE Fun Run & Walk

By Maggie Cameron / January 31, 2024 / Comments Off on Registration is OPEN for the 2024 EHE Fun Run & Walk

More information coming soon!

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EHE Awareness Month

By Maggie Cameron / January 31, 2024 / Comments Off on EHE Awareness Month
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Science Saturday: Patient-Powered Research

Community Connections – Science Saturday: Patient-Powered Research

By The EHE Foundation / January 31, 2024 / Comments Off on Community Connections – Science Saturday: Patient-Powered Research

Join The EHE Foundation’s Director of Research, Denise Robinson, as she explains the power of patients to advance research into EHE. What is patient-powered research, why does it matter, and how can you contribute? Join us to learn what’s happening in EHE research and the pivotal role you play in advancing our understanding of this […]

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