In the News

Group picture from Telluride Science Research Center workshop

The EHE Foundation Funds Fellowship Travel Grants

By The EHE Foundation / October 18, 2022 / Comments Off on The EHE Foundation Funds Fellowship Travel Grants

In June, the EHE Foundation provided two Fellowship Travel Grants supporting young investigators’ participation in a workshop entitled “YAP/TAZ and TEAD: At the Crossroads of Cancer.” The workshop is hosted annually by the Telluride Science Research Center (TSRC) and this year was co-led by notable EHE researchers and advocates – John Lamar, PhD, Albany Medical […]

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Jenni Kovach & Medha Deoras-Sutliff

An important message from Jenni Kovach, President, The EHE Foundation Board of Directors

By The EHE Foundation / October 5, 2022 / Comments Off on An important message from Jenni Kovach, President, The EHE Foundation Board of Directors

I am writing today to share an organizational change to The EHE Foundation. After four years as a part-time contractor, Medha Deoras-Sutliff has ended her engagement with the foundation to pursue other opportunities. Medha will continue to provide her services to the foundation until the end of November to ensure a smooth transition.  Medha came […]

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ESMO 2022 Congress

ESMO 2022 Congress

By The EHE Foundation / September 13, 2022 / Comments Off on ESMO 2022 Congress

EHE champions were on the global stage on September 9th, at the ESMO2022 Congress in Paris, France. ESMO, the European Society of Medical Oncology, is a leading professional organization for medical oncology education and information. Dr. Silvia Stacchiotti, a leading EHE clinical expert (Italy), and Hugh Leonard, Chair of Trustees of the EHE Rare Cancer […]

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2022 Research Grant Cycle Update

2022 EHE Research Grant Cycle Update

By The EHE Foundation / August 2, 2022 / Comments Off on 2022 EHE Research Grant Cycle Update

A pillar of The EHE Foundation’s mission is to seek treatments and a cure for EHE by pursuing scientific research, and one way we do this is by funding the most impactful EHE research projects possible. To support our mission, the Foundation issues a call for research grant proposals each year from the global scientific […]

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Ikena Oncology Logo

Planned Ikena Oncology Clinical Trial to Include EHE Patients

By The EHE Foundation / January 31, 2022 / Comments Off on Planned Ikena Oncology Clinical Trial to Include EHE Patients

The planned Phase 1 clinical trial includes patients with tumor types with a high frequency of Hippo pathway alterations, including NF2-deficient malignant mesothelioma and some soft tissue sarcomas with YAP/TAZ genetic fusions, including Epithelioid Hemangioendothelioma (EHE), a rare form of soft tissue sarcoma that has a significant unmet medical need with no currently approved therapy […]

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Patty Cogswell

The Importance of Biobanking

By The EHE Foundation / May 17, 2021 / Comments Off on The Importance of Biobanking

Biobanking is a brand-new endeavor for us at The EHE Foundation. Researchers retain frozen and stored tissue and biological samples from surgeries, which usually remains within the institution where the procedure takes place. Today, biobanking is a game-changer for rare disease and patient-led organizations like ours. Biobanks accelerate research by safe-guarding high-quality, donated tissue samples […]

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