In the News

IK-930 Orphan Drug Designation

IK-930 Receives Orphan Drug Designation for EHE

By The EHE Foundation / January 10, 2024 / Comments Off on IK-930 Receives Orphan Drug Designation for EHE

Ikena Oncology has shared that on December 14th, 2023, the Food and Drug Administration (FDA) granted Orphan Drug Designation to IK-930 for the treatment of epithelioid hemangioendothelioma (EHE). We are excited about this designation following initial positive data from the IK-930 Phase I clinical trial published in Ikena’s November 9th press release. What does this […]

Read More
John McFadden joins The EHE Foundation Board of Directors.

Welcome New Board Member John McFadden, Ph.D., CRNA, APRN

By The EHE Foundation / November 17, 2023 / Comments Off on Welcome New Board Member John McFadden, Ph.D., CRNA, APRN

The EHE Foundation was founded by patients, for patients. Continuing that tradition, we aredelighted to announce that EHE patient John McFadden, Ph.D., CRNA, APRN, has joined ourBoard of Directors. With more than 35 years of experience in health care, Dr. McFadden has held positions as anurse executive, hospital and university program accreditation surveyor, faculty member, […]

Read More
EHE at CTOS 2023

Highlights from CTOS 2023

By The EHE Foundation / November 8, 2023 / Comments Off on Highlights from CTOS 2023

Last week EHE Foundation Director of Research Denise Robinson, attended the Connective Tissue Oncology Society (CTOS) 2023 annual meeting in Dublin, Ireland. Every year, physicians, scientists, and advocates from around the world come together to advance patient care and increase knowledge in connective tissue tumors. EHE is one of over 100 subtypes of sarcoma, which […]

Read More
EHE Global Advocacy Meeting, Milan, Italy

EHE Global Research Convened in Milan, Italy

By The EHE Foundation / October 2, 2023 / Comments Off on EHE Global Research Convened in Milan, Italy

In September 2023, EHE Director of Research Denise Robinson met over three days in Milan, Italy, with patient advocates and researchers to discuss EHE research funded by this community. Exciting progress is happening in this multi-national collaborative research under the leadership of Dr. Silvia Stacchiotti and Dr. Nadia Zaffaroni (Istituto Nazionale Tumori IRCCS, Milan), and […]

Read More
2023 EHE Research Grants Cycle Update

2023 EHE Research Grants – Funding Impactful Projects That Support Our Mission

By The EHE Foundation / June 27, 2023 / Comments Off on 2023 EHE Research Grants – Funding Impactful Projects That Support Our Mission

The EHE Foundation seeks to support and fund the most promising basic, translational, and clinical research that will expand our current understanding of EHE and accelerate the development of treatments, and a cure for EHE. Each year, the Foundation initiates a new Research Grants Cycle, inviting researchers and clinician scientists from around the world to […]

Read More
ASCO 2023

Highlights From ASCO 2023

By The EHE Foundation / June 26, 2023 / Comments Off on Highlights From ASCO 2023

Our Director of Research, Denise Robinson, attended the American Society of Clinical Oncology (ASCO) 2023 Annual Meeting and the Sarcoma Alliance for Research through Collaboration (SARC) Semi-annual Meeting in Chicago, IL, in early June. Over 30,000 people joined together in person to conquer cancer! ASCO is the world’s leading organization for oncology, bringing together clinicians, […]

Read More