In the News

ASCO 2026: Conquering Cancer on the Global Stage

By EHE Foundation / June 4, 2026 / Comments Off on ASCO 2026: Conquering Cancer on the Global Stage

What an amazing ASCO 2026 for so many people affected by cancer. The ASCO Annual Meeting in Chicago brought tens of thousands of global oncology professionals together with the same goal – to change lives. EHE Foundation Executive Director Denise Robinson was there to represent the EHE community, raise awareness of patients’ needs, and connect […]

Big Steve Day 2025: A Celebration of Life, Friendship, and Giving Back

By EHE Foundation / September 23, 2025 / Comments Off on Big Steve Day 2025: A Celebration of Life, Friendship, and Giving Back

On Saturday, June 28, 2025, more than 80 golfers, friends, and family gathered at Stony Creek Golf Course in Oak Lawn, Illinois, for the Third Annual Big Steve Day Golf Outing — a day filled with laughter, camaraderie, and purpose. This annual event honors the life and spirit of Steve Walsh, Jr., whose memory continues […]

EHE Advocates Unite to Navigate Complexities of Drug Development

By EHE Foundation / September 19, 2025 / Comments Off on EHE Advocates Unite to Navigate Complexities of Drug Development

We are thrilled to share a new publication that includes participation of  EHE advocacy organizations: “How to foster new treatment development in ultra-rare tumours? Joint EMA-EORTC multi-stakeholder workshops on ultra-rare sarcomas as a model for rare cancers.”  Leaders of the EHE Rare Cancer Charity (UK), the EHE Foundation, and EHE ITALIA Associazione Non Solo Laura […]

EHE Advocates Join Forces to Fund Multi-National Research Expansion

By EHE Foundation / September 16, 2025 / Comments Off on EHE Advocates Join Forces to Fund Multi-National Research Expansion

As partners in EHE research to find better treatments for people with EHE, the EHE Rare Cancer Charity (UK), the EHE Foundation, and EHE ITALIA Associazione Non Solo Laura ODV are excited to share the expansion of the multi-national collaborative research project “The generation and characterization of patient-derived models of EHE to assess the activity […]

Advancing EHE Research at the 9th Annual YAP/TAZ and TEADs Workshop in Telluride, Colorado

By EHE Foundation / July 17, 2025 / Comments Off on Advancing EHE Research at the 9th Annual YAP/TAZ and TEADs Workshop in Telluride, Colorado

The 9th Annual YAP/TAZ and TEADs: At the Crossroads of Cancer workshop took place June 9-13, 2025, in the stunning mountain town of Telluride, Colorado. Hosted by the Telluride Science and Innovation Center and organized by Drs. Guy Weinberg and John Lamar, this unique gathering brought together top-tier researchers and clinicians from academia and industry […]

Strengthening Global Collaboration in Sarcoma: Highlights from the 2025 SPAGN Annual Conference

By EHE Foundation / May 6, 2025 / Comments Off on Strengthening Global Collaboration in Sarcoma: Highlights from the 2025 SPAGN Annual Conference

From April 11–13, 2025, representatives of The EHE Foundation participated in the 15th Annual Conference of the Sarcoma Patient Advocacy Global Network (SPAGN), marking SPAGN’s first conference in the United States. The National Cancer Institute (NCI) co-hosted the event, underscoring the importance of international collaboration in sarcoma advocacy. Denise Robinson commented, “As a long-time supporter […]