In the News

Tammy Silverthorne

The EHE Foundation Welcomes New Executive Director, Tammy Silverthorne

By The EHE Foundation / June 13, 2023 / Comments Off on The EHE Foundation Welcomes New Executive Director, Tammy Silverthorne

The EHE Foundation is pleased to announce that Tammy Silverthorne has been selected as Executive Director. With significant consideration given to the leadership skills, experience, and non-profit expertise needed to successfully guide the Foundation in its next phase of growth, the Board of Directors has selected Tammy Silverthorne to serve in this important leadership role. […]

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EHE Global Patient Registry Logo

The EHE Foundation and NORD® Launch Natural History Study of Epithelioid Hemangioendothelioma (EHE)

By The EHE Foundation / June 13, 2023 / Comments Off on The EHE Foundation and NORD® Launch Natural History Study of Epithelioid Hemangioendothelioma (EHE)

This research study is open to participants worldwide to advance understanding and treatments for epithelioid hemangioendothelioma (EHE), an ultra-rare vascular sarcoma. Hobart, Wisconsin. June 13, 2023 — The EHE Foundation and the National Organization for Rare Disorders (NORD®) have launched a global patient registry study to research epithelioid hemangioendothelioma (EHE), an ultra-rare vascular sarcoma for […]

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EHE 360 - Empowering Patients - 2023 Global Patient Conference

2023 EHE 360 EMPOWERING PATIENTS Global Patient Conference

By The EHE Foundation / April 29, 2023 / Comments Off on 2023 EHE 360 EMPOWERING PATIENTS Global Patient Conference

Held on April 15, 2023, during EHE Awareness Month, the annual EHE 360 EMPOWERING PATIENTS 2023 Global Patient Conference featured an international group of clinicians and researchers presenting the latest clinical and research developments in epithelioid hemangioendothelioma (EHE). This virtual conference left EHE patients and families, doctors, researchers, and advocates empowered with a broader understanding of EHE […]

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SARC Talk featuring Denise Robinson and Dr. Scott Okuno

SARC Talk Podcast Featuring EHE Research & Patient Advocacy

By The EHE Foundation / March 25, 2023 / Comments Off on SARC Talk Podcast Featuring EHE Research & Patient Advocacy

In March Denise Robinson, our Director of Research joined Dr. Scott Okuno, Chief Medical Officer for SARC (Sarcoma Alliance for Research through Collaboration) to talk about EHE research and patient advocacy. Their discussion beautifully lays out the challenges of facilitating research in the ultra-rare disease landscape. Denise and Dr. Okuno also talked about the growth […]

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Patient from Hell Podcast

Podcast Shares a Challenging Diagnostic Journey

By The EHE Foundation / February 7, 2023 / Comments Off on Podcast Shares a Challenging Diagnostic Journey

Jane Gutkovich, a founding member of The EHE Foundation and fierce EHE advocate, was a guest on World Cancer Day 2023 in the podcast Patient from Hell. Jane speaks with Samira Daswani in an episode entitled “Navigating Uncertainty, Making Decisions in the Absence of Data, Advocating & Caregiving”. Jane’s journey resonates with many people who […]

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Good Vibes for McKenna Raised $25K at Fundraiser

Good Vibes for McKenna, A Celebration Benefiting Cancer Research

By The EHE Foundation / January 27, 2023 / Comments Off on Good Vibes for McKenna, A Celebration Benefiting Cancer Research

Thanks to “Good Vibes for McKenna, A Celebration Benefiting Cancer Research” for hosting an EXTRAORDINARY two-day event held January 21st and 22nd in Fort Myers, Florida. We truly appreciate their $25,000 donation to The EHE Foundation to support EHE research and for creating much needed EHE awareness! The event featured a fine dining experience and […]

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