TISSUE DONATION IS CRITICAL TO FIND TREATMENTS! Click here to learn more.
Kim Young was diagnosed with EHE in March 2021, and Oct 2nd, 2022 was the second time she ran the Maine Marathon in support of The EHE Foundation. She is a champion for creating awareness for EHE, and we are grateful for her support. Kim teamed up with the Maine Marathon to allow the EHE […]
Read MoreAs the season of giving and gratefulness is upon us, we want to thank you for being a part of The EHE Foundation family. We appreciate you following our progress and investing in our passion: discovering effective treatments and a cure for EHE. We are thankful for our supporters, partners, and volunteers who make our […]
Read MoreThank you to our wonderful participants, supporters, and sponsors for making our 2021 EHE Fun Run and Walk a tremendous success! Together, more than 900 supporters across the nation helped raise more than $45,000. Thanks to the backing of our sponsors, every penny brought in for this event will go directly to EHE research. This […]
Read More