Signature Event

EHE Awareness Month

By Maggie Cameron / January 31, 2024 / Comments Off on EHE Awareness Month
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Register by April 30 for the 2023 EHE Fun Run & Walk

2023 EHE Fun Run & Walk Registration Deadline

By Maggie Cameron / April 15, 2023 / Comments Off on 2023 EHE Fun Run & Walk Registration Deadline

April 30th is the last day to register for the 2023 EHE Fun Run Register today for the 2023 EHE Fun Run and Walk. It is for all ages and abilities. It is also virtual, which means it can be done anywhere you are. You can walk around the block, do a 5K, or proudly […]

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EHE 360 - 2023 Global Patient Conference

EHE 360 Global Patient Conference

By Maggie Cameron / January 6, 2023 / Comments Off on EHE 360 Global Patient Conference

Join us for EHE 360, a virtual patient conference featuring an international group of clinicians and researchers bringing the latest information about EHE to patients and families. And, back by popular demand, our Ask the Expert Panel will give you an opportunity to present questions about EHE to experts, and get their insights LIVE! You will leave […]

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