Signature Event

2024 EHE Fun Run & Walk

2024 EHE Fun Run & Walk EARLY Registration Ends

By Maggie Cameron / March 11, 2024 / Comments Off on 2024 EHE Fun Run & Walk EARLY Registration Ends
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2024 EHE 360 Global Patient Conference

By Maggie Cameron / January 31, 2024 / Comments Off on 2024 EHE 360 Global Patient Conference

Join us for the 2024 EHE 360 Global Patient Conference, a virtual event featuring an international group of clinicians, researchers, and EHE advocacy groups bringing the latest information about EHE to patients and caregivers. Don’t miss this opportunity to come together with other EHE patients, families, caregivers, doctors, researchers, and advocates to learn, collaborate, and advance […]

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Registration Opens for the 2024 EHE 360 Global Patient Conference

By Maggie Cameron / January 31, 2024 / Comments Off on Registration Opens for the 2024 EHE 360 Global Patient Conference

Join us for the 2024 EHE 360 Global Patient Conference, a virtual event featuring an international group of clinicians, researchers, and EHE advocacy groups bringing the latest information about EHE to patients and caregivers. Don’t miss this opportunity to come together with other EHE patients, families, caregivers, doctors, researchers, and advocates to learn, collaborate, and advance […]

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2024 EHE Fun Run & Walk Registration is Open

Registration is OPEN for the 2024 EHE Fun Run & Walk

By Maggie Cameron / January 31, 2024 / Comments Off on Registration is OPEN for the 2024 EHE Fun Run & Walk

More information coming soon!

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EHE Awareness Month

By Maggie Cameron / January 31, 2024 / Comments Off on EHE Awareness Month
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Register by April 30 for the 2023 EHE Fun Run & Walk

2023 EHE Fun Run & Walk Registration Deadline

By Maggie Cameron / April 15, 2023 / Comments Off on 2023 EHE Fun Run & Walk Registration Deadline

April 30th is the last day to register for the 2023 EHE Fun Run Register today for the 2023 EHE Fun Run and Walk. It is for all ages and abilities. It is also virtual, which means it can be done anywhere you are. You can walk around the block, do a 5K, or proudly […]

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