Signature Event

2025 EHE Fun Run & Walk

2025 EHE Fun Run & Walk Early Bird Registration

By Maggie Cameron / February 10, 2025 / Comments Off on 2025 EHE Fun Run & Walk Early Bird Registration
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EHE 360 Global Patient Conference

By Maggie Cameron / October 11, 2024 / Comments Off on EHE 360 Global Patient Conference
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2024 EHE Fun Run & Walk

2024 EHE Fun Run & Walk EARLY Registration Ends

By Maggie Cameron / March 11, 2024 / Comments Off on 2024 EHE Fun Run & Walk EARLY Registration Ends
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2024 EHE 360 Global Patient Conference

By Maggie Cameron / January 31, 2024 / Comments Off on 2024 EHE 360 Global Patient Conference

Join us for the 2024 EHE 360 Global Patient Conference, a virtual event featuring an international group of clinicians, researchers, and EHE advocacy groups bringing the latest information about EHE to patients and caregivers. Don’t miss this opportunity to come together with other EHE patients, families, caregivers, doctors, researchers, and advocates to learn, collaborate, and advance […]

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Registration Opens for the 2024 EHE 360 Global Patient Conference

By Maggie Cameron / January 31, 2024 / Comments Off on Registration Opens for the 2024 EHE 360 Global Patient Conference

Join us for the 2024 EHE 360 Global Patient Conference, a virtual event featuring an international group of clinicians, researchers, and EHE advocacy groups bringing the latest information about EHE to patients and caregivers. Don’t miss this opportunity to come together with other EHE patients, families, caregivers, doctors, researchers, and advocates to learn, collaborate, and advance […]

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2024 EHE Fun Run & Walk Registration is Open

Registration is OPEN for the 2024 EHE Fun Run & Walk

By Maggie Cameron / January 31, 2024 / Comments Off on Registration is OPEN for the 2024 EHE Fun Run & Walk

More information coming soon!

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