Signature Event

April is EHE Awareness Month.

EHE Awareness Month

By The EHE Foundation / March 27, 2025 / Comments Off on EHE Awareness Month

Every April, The EHE Foundation and the global patient and caregiver community share stories and facts about EHE to rally support for the advancement of EHE research. Wherever you are, we encourage you to participate and help us raise #EHEAwareness!

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2025 EHE Fun Run & Walk

2025 EHE Fun Run & Walk

By The EHE Foundation / March 26, 2025 / Comments Off on 2025 EHE Fun Run & Walk
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2025 EHE Fun Run & Walk

2025 EHE Fun Run & Walk Early Bird Registration

By Maggie Cameron / February 10, 2025 / Comments Off on 2025 EHE Fun Run & Walk Early Bird Registration
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EHE 360 Global Patient Conference

By Maggie Cameron / October 11, 2024 / Comments Off on EHE 360 Global Patient Conference
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2024 EHE Fun Run & Walk

2024 EHE Fun Run & Walk EARLY Registration Ends

By Maggie Cameron / March 11, 2024 / Comments Off on 2024 EHE Fun Run & Walk EARLY Registration Ends
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2024 EHE 360 Global Patient Conference

By Maggie Cameron / January 31, 2024 / Comments Off on 2024 EHE 360 Global Patient Conference

Join us for the 2024 EHE 360 Global Patient Conference, a virtual event featuring an international group of clinicians, researchers, and EHE advocacy groups bringing the latest information about EHE to patients and caregivers. Don’t miss this opportunity to come together with other EHE patients, families, caregivers, doctors, researchers, and advocates to learn, collaborate, and advance […]

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