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Events
An EHE diagnosis is devastating for many people. It can leave individuals feeling hopeless and frustrated when navigating limited treatment options and exhausted from searching for supportive care beyond the clinic. The EHE Foundation aims to help people diagnosed with EHE through supportive services, community sharing, and patient empowerment. These free and private virtual sessions […]
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An EHE diagnosis is devastating for many people. It can leave individuals feeling hopeless and frustrated when navigating limited treatment options and exhausted from searching for supportive care beyond the clinic. The EHE Foundation aims to help people diagnosed with EHE through supportive services, community sharing, and patient empowerment. These free and private virtual sessions […]
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Every April, The EHE Foundation and the global patient and caregiver community share stories and facts about EHE to rally support for the advancement of EHE research. Wherever you are, we encourage you to participate and help us raise #EHEAwareness!
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You’re invited to an EHE Meetup! Most of us have never met another EHE patient in person—let’s change that! Join us on Sunday, April 13th, for an in-person EHE Meetup at the Bethesdan Hotel in Bethesda, MD (Washington, D.C. area) from 2:00 – 4:00 PM ET, immediately following the Sarcoma Patient Advocacy Global Network (SPAGN) […]
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