Events

EHE Support Groups

EHE Support Group

By The EHE Foundation / June 8, 2025 / Comments Off on EHE Support Group

An EHE diagnosis is devastating for many people. It can leave individuals feeling hopeless and frustrated when navigating limited treatment options and exhausted from searching for supportive care beyond the clinic. The EHE Foundation aims to help people diagnosed with EHE through supportive services, community engagement, and patient empowerment. These free and private virtual meetings […]

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EHE Support Groups

EHE Support Group

By The EHE Foundation / April 17, 2025 / Comments Off on EHE Support Group

An EHE diagnosis is devastating for many people. It can leave individuals feeling hopeless and frustrated when navigating limited treatment options and exhausted from searching for supportive care beyond the clinic. The EHE Foundation aims to help people diagnosed with EHE through supportive services, community sharing, and patient empowerment. These free and private virtual sessions […]

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EHE Support Groups

EHE Support Group

By The EHE Foundation / April 17, 2025 / Comments Off on EHE Support Group

An EHE diagnosis is devastating for many people. It can leave individuals feeling hopeless and frustrated when navigating limited treatment options and exhausted from searching for supportive care beyond the clinic. The EHE Foundation aims to help people diagnosed with EHE through supportive services, community sharing, and patient empowerment. These free and private virtual sessions […]

Read More
EHE Support Groups

EHE Support Group

By The EHE Foundation / April 17, 2025 / Comments Off on EHE Support Group

An EHE diagnosis is devastating for many people. It can leave individuals feeling hopeless and frustrated when navigating limited treatment options and exhausted from searching for supportive care beyond the clinic. The EHE Foundation aims to help people diagnosed with EHE through supportive services, community sharing, and patient empowerment. These free and private virtual sessions […]

Read More
April is EHE Awareness Month.

EHE Awareness Month

By The EHE Foundation / March 27, 2025 / Comments Off on EHE Awareness Month

Every April, The EHE Foundation and the global patient and caregiver community share stories and facts about EHE to rally support for the advancement of EHE research. Wherever you are, we encourage you to participate and help us raise #EHEAwareness!

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2025 EHE Fun Run & Walk

2025 EHE Fun Run & Walk

By The EHE Foundation / March 26, 2025 / Comments Off on 2025 EHE Fun Run & Walk
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