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Events
Every April, The EHE Foundation and the global patient and caregiver community share stories and facts about EHE to rally support for the advancement of EHE research. Wherever you are, we encourage you to participate and help us raise #EHEAwareness!
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You’re invited to an EHE Meetup! Most of us have never met another EHE patient in person—let’s change that! Join us on Sunday, April 13th, for an in-person EHE Meetup at the Bethesdan Hotel in Bethesda, MD (Washington, D.C. area) from 2:00 – 4:00 PM ET, immediately following the Sarcoma Patient Advocacy Global Network (SPAGN) […]
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Dr. Scott M. Schuetze, University of Michigan, Rogel Cancer Center, will provide an overview of the rationale for treatment of EHE with trametinib, an oral inhibitor of the MEK kinase; the trial design of 10015/SARC033; and the results of the primary and secondary study endpoints. The presentation will also include an update on exploratory investigation […]
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Join us for EHE 360 Connect on Wednesday, January 22, 2025, 12:00-1:00 pm ET. This webinar features Dr. Silvia Stacchiotti, Medical Oncologist at the Fondazione IRCCS Istituto Nazionale dei Tumori, Milan, Italy, presenting “Sirolimus for the Treatment of EHE.” In this session, Dr. Stacchiotti will highlight data currently available on the use of Sirolimus to […]
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