EHE Community Connections
EHE Community Connections

Science Saturday: Patient-Powered Research

Denise Robinson, Director of Research, The EHE Foundation
February 24, 2024
11:00 am - 12:00 pm
Link to register will not be active after the event.

Join The EHE Foundation’s Director of Research, Denise Robinson, as she explains the power of patients to advance research into EHE. What is patient-powered research, why does it matter, and how can you contribute? Join us to learn what’s happening in EHE research and the pivotal role you play in advancing our understanding of this rare disease.

Session Recording