Press Releases

Denise Robinson, EHE Foundation Executive Director

The EHE Foundation Appoints New Executive Director

By The EHE Foundation / August 14, 2024 / Comments Off on The EHE Foundation Appoints New Executive Director

On behalf of the Board of Directors of The EHE Foundation, Jenni Kovach, Board President has announced the appointment of Denise Robinson as the new Executive Director for the Foundation.  Like many people, Denise had not heard of EHE until her friend was diagnosed in 2017 with an aggressive form of the disease. She soon […]

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Ikena Oncology's IK-930 Trial Discontinued

Ikena Oncology IK-930 Update

By The EHE Foundation / June 7, 2024 / Comments Off on Ikena Oncology IK-930 Update

On May 28, 2024, Ikena Oncology announced they are discontinuing the development of IK-930. We share your frustration and disappointment and understand the devastating impact felt by patients. Following this announcement, we met with Ikena to impress upon them the urgency and importance that patients deriving benefits from IK-930 continue to have access to the […]

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EHE Global Patient Registry Logo

The EHE Foundation and NORD® Launch Natural History Study of Epithelioid Hemangioendothelioma (EHE)

By The EHE Foundation / June 13, 2023 / Comments Off on The EHE Foundation and NORD® Launch Natural History Study of Epithelioid Hemangioendothelioma (EHE)

This research study is open to participants worldwide to advance understanding and treatments for epithelioid hemangioendothelioma (EHE), an ultra-rare vascular sarcoma. Hobart, Wisconsin. June 13, 2023 — The EHE Foundation and the National Organization for Rare Disorders (NORD®) have launched a global patient registry study to research epithelioid hemangioendothelioma (EHE), an ultra-rare vascular sarcoma for […]

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EHE Clinical Trials

The EHE Foundation Receives $1M Transformational Gift from the Margie and Robert E. Petersen Foundation

By The EHE Foundation / October 11, 2021 / Comments Off on The EHE Foundation Receives $1M Transformational Gift from the Margie and Robert E. Petersen Foundation

FOR IMMEDIATE RELEASEContact: Medha Deoras-Sutliff, [email protected] Hobart, Wisconsin. (October 12, 2021) — The EHE Foundation announced today that it has received a $1 million award from the Margie and Robert E. Petersen Foundation to drive forward progress towards treatments and a cure for Epithelioid Hemangioendothelioma (EHE), a rare vascular cancer. This support provides capacity-building resources […]

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Rare As One Logo

The EHE Foundation Receives $450,000 Award from the Chan Zuckerberg Initiative

By The EHE Foundation / February 3, 2020 / Comments Off on The EHE Foundation Receives $450,000 Award from the Chan Zuckerberg Initiative

FOR IMMEDIATE RELEASE Contact: Medha Deoras-Sutliff, [email protected] HOBART, Wis. (Feb. 3, 2020) — Today, The EHE Foundation announced it will receive a $450,000 award from the Chan Zuckerberg Initiative (CZI) to drive progress towards treatments and a cure for Epithelioid Hemangioendothelioma (EHE), a rare vascular cancer. The award recognizes The EHE Foundation as part of […]

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EHE Partners

The EHE Foundation and Cleveland Clinic Receive $1M Research Gift from the Margie and Robert E. Petersen Foundation

By The EHE Foundation / August 14, 2019 / Comments Off on The EHE Foundation and Cleveland Clinic Receive $1M Research Gift from the Margie and Robert E. Petersen Foundation

FOR IMMEDIATE RELEASE Contact: LeeAnn Conner, [email protected] Fundraising across the world will secure additional $1M through a matching grant from the Petersen Foundation August 15, 2019 (Hobart, WI): The EHE Foundation and Cleveland Clinic received a major gift from the Margie and Robert E. Petersen Foundation. One million dollars will be donated to Cleveland Clinic […]

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