FOR IMMEDIATE RELEASE
Contact: Medha Deoras-Sutliff, [email protected]
Hobart, Wisconsin. (October 12, 2021) — The EHE Foundation announced today that it has received a $1 million award from the Margie and Robert E. Petersen Foundation to drive forward progress towards treatments and a cure for Epithelioid Hemangioendothelioma (EHE), a rare vascular cancer. This support provides capacity-building resources and essential funding for important Foundation-led research initiatives and will primarily focus on the first global EHE Patient Registry and the EHE Biobank.
“A private gift of this magnitude is transformational for our Foundation and will greatly intensify EHE research,” said Medha Deoras-Sutliff, Executive Director of The EHE Foundation. “Our patient-led research efforts are critical to understand the course of EHE and provides information essential to clinicians and researchers. We are so grateful to the Margie and Robert E. Petersen Foundation for their support.”
This builds upon previous gifts in recent years by Margie and Robert E. Petersen Foundation to The EHE Foundation and Cleveland Clinic. The funds directly supported EHE research conducted by Brian Rubin, MD, PhD., Chairman of the Robert J. Tomsich Pathology and Laboratory Medicine Institute at Cleveland Clinic. The Petersen Foundation had challenged The EHE Foundation to raise another $1 million over three years, which they matched to further fund EHE research at the Cleveland Clinic. The Petersen Foundation gifted another $1 million in 2021 to continue Dr. Rubin’s promising work at Cleveland Clinic. To date, the Petersen Foundation has given $4 million to fund EHE research.
“Our Foundation is 100% committed to finding a cure and supporting EHE patients and families,” said Jenni Kovach, Board President of The EHE Foundation and an EHE patient. “We are incredibly grateful to the Petersen Foundation for their years of support and funding. This award brings us closer to our goal – a world where EHE is treatable and curable.”
Automobile publishing giant Robert E. Petersen owned magazines such as Motor Trend and Hot Rod Magazine and founded the Petersen Automotive Museum in Los Angeles.
The EHE Foundation, founded in 2015, is an international patient advocacy organization dedicated to seeking treatments and a cure for EHE by increasing awareness, pursuing scientific research, advocating for and supporting EHE patients, and bridging information between researchers, providers and patients. Through grassroots fundraising and the deep involvement of a tight-knit global community, The EHE Foundation has been able to jump start promising research and create hope for EHE patients and their families. For more information, please visit www.fightehe.org.