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Updated: April 18, 2025 A cancer diagnosis can be one of the most daunting experiences in life, not just physically, but mentally and emotionally as well. The journey through diagnosis, treatment, and everything in between often feels like a roller coaster, filled with uncertainty, fear, and a range of intense emotions. It’s essential to acknowledge […]
Read MoreWhat do you want others to know about EHE? “EHE is incredibly rare and I’ve never even learned how to say it or spell it! I was diagnosed over 5 years ago and had active chemo treatment during 2017 and 2021. I was incredibly blessed to live in a capital city with a lead EHE […]
Read MoreWhat do you want others to know about EHE? “EHE was silent for me. I was having chest pain and went to the ER thinking it was from stress, only to find out I had a rare disease. It was hard for me and my family to take in. I recommend always getting a second […]
Read MoreIn March Denise Robinson, Director of Research for The EHE Foundation attended the ESMO Sarcoma and Rare Cancers Congres 2024 in Lugano, Switzerland. This congress brought together world-renowned experts including researchers and clinicians, to present and discuss the latest advancements in the treatment of sarcomas and rare cancers. Topics ranged from the role of immune […]
Read MoreUnder the umbrella of the Connective Tissue Oncology Society (CTOS) Ultra-rare Sarcoma Working Group, a broad group representing the global sarcoma community, including clinicians, scientists, patient advocates, and non-profit organizations, has come together to form PUSH (Pushing Ultra-Rare Sarcomas Beyond Hope). This consortium has been established to collect and make the best use of all […]
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