The EHE Foundation

IK-930 Orphan Drug Designation

IK-930 Receives Orphan Drug Designation for EHE

By The EHE Foundation / January 10, 2024 / Comments Off on IK-930 Receives Orphan Drug Designation for EHE

Ikena Oncology has shared that on December 14th, 2023, the Food and Drug Administration (FDA) granted Orphan Drug Designation to IK-930 for the treatment of epithelioid hemangioendothelioma (EHE). We are excited about this designation following initial positive data from the IK-930 Phase I clinical trial published in Ikena’s November 9th press release. What does this […]

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Giving Tuesday 2023 Raises over $160k for EHE Research

By The EHE Foundation / December 15, 2023 / Comments Off on Giving Tuesday 2023 Raises over $160k for EHE Research

Thank you! Together, we raised more than $160,000 to fund critically needed research into epithelioid hemangioendothelioma (EHE). Rare cancers, like EHE, lack sufficient governmental and pharmaceutical funding sources available for more common cancers. Your donations support our work to level the playing field. A special thanks to: Thank you for joining us in our fight […]

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2023 EHE Foundation Research Grant Awards

2023 EHE Foundation Research Grant Awards Announcement

By The EHE Foundation / December 12, 2023 / Comments Off on 2023 EHE Foundation Research Grant Awards Announcement

The EHE Foundation awards research grants to advance our mission to find treatments and a cure for EHE. With the guidance of our Research Committee, Advisory Board, and expert reviewers, we are pleased to announce the research grants awarded in 2023:   Ajaybabu Pobbati, PhD, Cleveland Clinic Lerner Research Institute Harnessing FDA-approved drugs to gain mechanistic […]

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The Pledge

The Pledge: Edition 34, Q3 – July-September, 2023

By The EHE Foundation / December 11, 2023 / Comments Off on The Pledge: Edition 34, Q3 – July-September, 2023

Publication of The Pledge quarterly newsletter is led by the EHE Rare Cancer Charity (UK). EHE patient advocacy groups from around the globe. provide content including research news, patient and fundraising stories, and much more! Click here to view the most recent edition of our online EHE newsletter, The Pledge.

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Brianna Carney

Brianna Carney

By The EHE Foundation / November 22, 2023 / Comments Off on Brianna Carney

Brianna Carney was only 23 when she passed on December 26, 2022. She was full of life and lived it to the fullest. She was passionate about those she loved, her dogs, rescuing other dogs, helping people, and being the best version of herself through hard work. She was a first-generation graduate of Nova Southeastern […]

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John McFadden joins The EHE Foundation Board of Directors.

Welcome New Board Member John McFadden, Ph.D., CRNA, APRN

By The EHE Foundation / November 17, 2023 / Comments Off on Welcome New Board Member John McFadden, Ph.D., CRNA, APRN

The EHE Foundation was founded by patients, for patients. Continuing that tradition, we aredelighted to announce that EHE patient John McFadden, Ph.D., CRNA, APRN, has joined ourBoard of Directors. With more than 35 years of experience in health care, Dr. McFadden has held positions as anurse executive, hospital and university program accreditation surveyor, faculty member, […]

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