The EHE Foundation

EHE community donations expand grant.

Planting Seeds for Future Developments: EHEF Research Grant Grows

By The EHE Foundation / June 14, 2024 / Comments Off on Planting Seeds for Future Developments: EHEF Research Grant Grows

The EHE Foundation invests in novel EHE research yearly through its EHE Research Grants Program. The program officially began in 2021, with only a few applicants interested in EHE research. Today, 10 applicants have submitted proposals in our 2024 grants cycle.  Along the way, we have had the good fortune to meet and collaborate with […]

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Ikena Oncology's IK-930 Trial Discontinued

Ikena Oncology IK-930 Update

By The EHE Foundation / June 7, 2024 / Comments Off on Ikena Oncology IK-930 Update

On May 28, 2024, Ikena Oncology announced they are discontinuing the development of IK-930. We share your frustration and disappointment and understand the devastating impact felt by patients. Following this announcement, we met with Ikena to impress upon them the urgency and importance that patients deriving benefits from IK-930 continue to have access to the […]

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EHE Mental Health Awareness

Navigating the Mental Health Challenges of an EHE Diagnosis and Treatment

By The EHE Foundation / May 30, 2024 / Comments Off on Navigating the Mental Health Challenges of an EHE Diagnosis and Treatment

A cancer diagnosis can be one of the most daunting experiences in life, not just physically, but mentally and emotionally as well. The journey through diagnosis, treatment, and everything in between often feels like a roller coaster, filled with uncertainty, fear, and a range of intense emotions. It’s important to acknowledge these challenges and find […]

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The Pledge Q1 2024

The Pledge: Edition 36, Q1 – January-March, 2024

By The EHE Foundation / May 28, 2024 / Comments Off on The Pledge: Edition 36, Q1 – January-March, 2024

Publication of The Pledge quarterly newsletter is led by the EHE Rare Cancer Charity (UK). EHE patient advocacy groups from around the globe. provide content including research news, patient and fundraising stories, and much more. Click here to view the most recent edition of our online EHE newsletter, The Pledge.

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Sherri Laurie

Sherri Laurie

By The EHE Foundation / April 29, 2024 / Comments Off on Sherri Laurie

What do you want others to know about EHE? “EHE is incredibly rare and I’ve never even learned how to say it or spell it! I was diagnosed over 5 years ago and had active chemo treatment during 2017 and 2021. I was incredibly blessed to live in a capital city with a lead EHE […]

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Vanessa Sickles

Vanessa Sickles

By The EHE Foundation / April 25, 2024 / Comments Off on Vanessa Sickles

What do you want others to know about EHE? “EHE was silent for me. I was having chest pain and went to the ER thinking it was from stress, only to find out I had a rare disease. It was hard for me and my family to take in. I recommend always getting a second […]

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